Department of Dermatology, Royal Gwent Hospital, Newport, UK.
Clin Exp Dermatol. 2012 Oct;37(7):735-40. doi: 10.1111/j.1365-2230.2012.04457.x.
Quality of life self-rating using a web-based survey has not previously been evaluated for psoriasis in the UK.
To use an open-access web-based survey to assess the effect of psoriasis on patients' daily life. Methods. The survey was conducted using a dedicated website endorsed by a UK psoriasis patient charity.
In total, 1760 patients (1102 women, 658 men; median age range 40-44 years) assessed their psoriasis using the website. Psoriasis was 'very' or 'extremely' active in 52%, and 71% had been diagnosed > 10 years previously. Psoriasis had negatively affected the working life of 59% of patients, and the educational performance of 31%.
The use of an open-access web-based survey may address potential bias in previous studies, but may itself introduce a bias towards younger patients. This is the first report of a web-based survey of UK patients with psoriasis, providing further recent evidence of how psoriasis affects patients' lives.
此前，英国尚未对基于网络的银屑病生活质量自评进行评估。
利用开放获取的网络调查评估银屑病对患者日常生活的影响。方法。该调查是使用英国银屑病患者慈善机构认可的专用网站进行的。
共有 1760 名患者（1102 名女性，658 名男性；中位年龄 40-44 岁）使用该网站评估了他们的银屑病。52%的患者银屑病“非常”或“极其”活跃，71%的患者在 10 年前被诊断为银屑病。59%的患者的工作生活受到负面影响，31%的患者的教育表现受到影响。
使用开放获取的网络调查可能会解决以往研究中的潜在偏差，但本身可能会偏向年轻患者。这是英国银屑病患者网络调查的首次报告，进一步提供了关于银屑病如何影响患者生活的最新证据。
