Endo Koki, Higaki Yuko, Cho Ami, Sugimoto Yoshiyuki, Ikumi Kyoko, Okamura Miyu, Matsuo Moe, Tada Yayoi
The Jikei University Kashiwa Hospital, Chiba, Japan.
Wakamatsu-Cho Mental and Skin Clinic, Tokyo, Japan.
J Dermatol. 2025 Sep;52(9):1439-1446. doi: 10.1111/1346-8138.17835. Epub 2025 Jul 16.
International studies describe considerable multi-faceted burdens for patients living with psoriasis vulgaris. However, there is few research on the experience in the life of patients with psoriasis vulgaris in Japan, particularly regarding psychosocial impacts when symptoms are visible parts of their body. A qualitative descriptive study using semi-structured one-on-one interviews was conducted with 23 patients. Interviews focused on the impact of psoriasis vulgaris on motivation, daily life, social interactions, life course decisions, and psychological burdens, and the transcripts were distilled into discrete qualitative concepts. Common concepts elicited from patients included changes in clothing preferences and reluctance to engage in public activities like visiting public baths and pools due to their visible skin lesions. Many patients reported encountering misconceptions about their condition, which impacted their social relationships. Notably, effective treatment led to positive life changes. The adoption of a more patient-centered treatment design may reduce the unique psychological challenges faced by individuals living with visible psoriasis vulgaris symptoms and increase their quality of life.
国际研究表明，寻常型银屑病患者面临着多方面的沉重负担。然而，关于日本寻常型银屑病患者生活经历的研究较少，尤其是当症状出现在身体可见部位时对心理社会的影响。我们对23名患者进行了一项采用半结构化一对一访谈的定性描述性研究。访谈聚焦于寻常型银屑病对动机、日常生活、社交互动、人生历程决策和心理负担的影响，并将访谈记录提炼为离散的定性概念。患者提出的常见概念包括服装偏好的改变，以及由于可见的皮肤病变而不愿参加诸如去公共浴室和游泳池等公共活动。许多患者报告说，他们遭遇了对其病情的误解，这影响了他们的社会关系。值得注意的是，有效的治疗带来了积极的生活变化。采用更以患者为中心的治疗设计可能会减少有明显寻常型银屑病症状的个体所面临的独特心理挑战，并提高他们的生活质量。
