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特应性皮炎患儿及青少年的生活质量

Quality of life in children and teenagers with atopic dermatitis.

作者信息

Amaral Cláudia Soïdo Falcão do, March Maria de Fátima Bazhuni Pombo, Sant'Anna Clemax Couto

机构信息

Allergy and Immunology Service, Instituto de Dermatologia Professor Rubem David Azulay, Santa Casa da Misericórdia do Rio de Janeiro, Brazil.

出版信息

An Bras Dermatol. 2012 Sep-Oct;87(5):717-23. doi: 10.1590/s0365-05962012000500008.

Abstract

BACKGROUND

Atopic Dermatitis is a disease which has increased during the past years despite our improved understanding of it.

OBJECTIVE

To assess the impact of Atopic Dermatitis in the quality of life of children and teenagers and their family.

METHOD

A descriptive cross-sectional method with prospective data collection of 50 children and teenagers diagnosed with Atopic Dermatitis ranging in age from 5-16 years. Fifty parents and/or guardians answered the quality of life questionnaires The Children's Dermatology Life Quality Index and Family Dermatitis Impact Questionnaire. The socio-demographic and clinical variables were evaluated by a clinical record chart designed specifically for the research and socioeconomic standardized questionnaire by the Brazilian Association of Research Enterprises, which evaluates assets acquired and the educational level of the head of the household.

RESULTS

Thirty-five out of the 50 patients were female (70%), and 28 (56%) of them were from social class C. The Questionnaire Children's Dermatology Life Quality Index showed that 19 (38%) patients ranged from 7 to 12 points (moderate impact of atopic dermatitis) and 17 patients (34%) ranged from 13 to 30 points (high impact of atopic dermatitis). The Family Dermatitis Impact Questionnaire revealed that 15 (30%) families had scores between 7 and 12 points and 22 families (44%) scored between 13 and 30 points.

CONCLUSION

The results show that there is a very high impact on the QoL for atopic dermatitis patients and their families. This makes us suggest the importance of including the quality of life study in clinical evaluations.

摘要

背景

尽管我们对特应性皮炎的认识有所提高,但在过去几年中,该疾病的发病率仍在上升。

目的

评估特应性皮炎对儿童、青少年及其家庭生活质量的影响。

方法

采用描述性横断面研究方法,前瞻性收集50例年龄在5至16岁之间诊断为特应性皮炎的儿童和青少年的数据。50名家长和/或监护人回答了生活质量问卷,即儿童皮肤病生活质量指数和家庭性皮炎影响问卷。社会人口统计学和临床变量通过专门为该研究设计的临床记录图表进行评估,社会经济状况则通过巴西研究企业协会的标准化问卷进行评估,该问卷评估家庭资产和户主的教育水平。

结果

50例患者中有35例为女性(70%),其中28例(56%)来自社会阶层C。儿童皮肤病生活质量指数问卷显示,19例(38%)患者的得分在7至12分之间(特应性皮炎影响程度中等),17例(34%)患者的得分在13至30分之间(特应性皮炎影响程度高)。家庭性皮炎影响问卷显示,15个(30%)家庭的得分在7至12分之间,22个(44%)家庭的得分在13至30分之间。

结论

结果表明,特应性皮炎对患者及其家庭的生活质量有非常高的影响。这使我们认识到在临床评估中纳入生活质量研究的重要性。

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