Wen Kuang-Yi, McTavish Fiona, Kreps Gary, Wise Meg, Gustafson David
Fox Chase Cancer Center.
J Comput Mediat Commun. 2011 Jan;16(2):331-361. doi: 10.1111/j.1083-6101.2011.01542.x. Epub 2011 Jan 13.
To understand the underlying psychosocial reactions against the unfolding of medical events that announce the disease progression, the objective of this analysis was to identify the patterns of online discussion group message themes in relation to the medical timeline of one woman's breast cancer trajectory. 202 messages posted by Darlene (our studied case) were analyzed by 2 independent coders using a grounded theory approach. The findings suggest that the pattern of messages was clearly correlated with distress-inducing events. The most frequent interaction theme was about building friendship with peers through communication of encouragement, validation, appreciation, and life sharing. Narratives of medical progression were constantly updated to identify similarities with peers. Family issues were increasingly raised at the end of life.
为了解针对宣告疾病进展的医疗事件发展所产生的潜在心理社会反应,本分析的目的是确定与一名女性乳腺癌病程医疗时间线相关的在线讨论组消息主题模式。两名独立编码员采用扎根理论方法对达琳(我们的研究案例)发布的202条消息进行了分析。研究结果表明,消息模式与引发痛苦的事件明显相关。最常见的互动主题是通过鼓励、认可、赞赏和分享生活来与同龄人建立友谊。不断更新医疗进展的叙述以找出与同龄人的相似之处。在生命末期,家庭问题被越来越多地提及。