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本文引用的文献

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Computer-mediated infertility support groups: an exploratory study of online experiences.计算机介导的不孕症支持小组:在线体验的探索性研究。
Patient Educ Couns. 2008 Oct;73(1):105-13. doi: 10.1016/j.pec.2008.05.024. Epub 2008 Jul 18.
2
Patient-centred care: What are the experiences of prostate cancer patients and their partners?以患者为中心的护理:前列腺癌患者及其伴侣的经历是怎样的?
Patient Educ Couns. 2008 Oct;73(1):91-6. doi: 10.1016/j.pec.2008.05.001. Epub 2008 Jun 18.
3
Exploring the communication of social support within virtual communities: a content analysis of messages posted to an online HIV/AIDS support group.探索虚拟社区内社会支持的交流:对在线艾滋病毒/艾滋病支持小组发布的信息进行内容分析
Cyberpsychol Behav. 2008 Jun;11(3):371-4. doi: 10.1089/cpb.2007.0118.
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How patients' experiences contribute to decision making: illustrations from DIPEx (personal experiences of health and illness).患者的经历如何影响决策:来自DIPEx(健康与疾病的个人经历)的例证
J Nurs Manag. 2008 May;16(4):433-9. doi: 10.1111/j.1365-2834.2008.00863.x.
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Clinicians' attitudes to prostate cancer peer-support groups.临床医生对前列腺癌同伴支持小组的态度。
BJU Int. 2007 Jan;99(1):68-71. doi: 10.1111/j.1464-410X.2006.06545.x. Epub 2006 Oct 9.
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The choice is yours? How women with ovarian cancer make sense of treatment choices.选择权在你?卵巢癌女性如何理解治疗选择。
Patient Educ Couns. 2006 Sep;62(3):361-7. doi: 10.1016/j.pec.2006.06.014. Epub 2006 Jul 28.
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Accuracy and self correction of information received from an internet breast cancer list: content analysis.从互联网乳腺癌列表获取信息的准确性与自我纠正:内容分析
BMJ. 2006 Apr 22;332(7547):939-42. doi: 10.1136/bmj.38753.524201.7C. Epub 2006 Mar 2.
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Communication of social support in computer-mediated groups for people with disabilities.在计算机介导的群体中为残疾人提供社会支持的交流。
Health Commun. 1999;11(2):123-51. doi: 10.1207/s15327027hc1102_2.
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Receiving social support online: an analysis of a computer-mediated support group for individuals living with irritable bowel syndrome.在线获得社会支持:对一个针对肠易激综合征患者的计算机介导支持小组的分析。
Cyberpsychol Behav. 2005 Dec;8(6):580-4. doi: 10.1089/cpb.2005.8.580.
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Treatment decision-making strategies and influences in patients with localized prostate carcinoma.局限性前列腺癌患者的治疗决策策略及影响因素
Cancer. 2005 Oct 1;104(7):1381-90. doi: 10.1002/cncr.21330.

交流健康决策:对在线前列腺癌论坛帖子内容的分析。

Communicating health decisions: an analysis of messages posted to online prostate cancer forums.

机构信息

Lecturer, PaCT Lab, School of Life Sciences, Northumbria University, Newcastle upon Tyne, UKResearch Assistant Professor, Centre for Health Behaviours Research, School of Public Health and Primary Care, The Chinese University of Hong Kong, Hong Kong, SAR.

出版信息

Health Expect. 2014 Apr;17(2):244-53. doi: 10.1111/j.1369-7625.2011.00745.x. Epub 2012 Feb 2.

DOI:10.1111/j.1369-7625.2011.00745.x
PMID:22296292
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5060709/
Abstract

BACKGROUND

Experiential websites such as message forums and blogs allow Prostate Cancer (PCa) patients to communicate their health decisions to peers. The issues surrounding this form of indirect involvement in public health are little understood.

OBJECTIVE

This paper explores the types of decision-making processes that people are exposed to on PCa online message boards. The kinds of treatment choices patients are making and the reports of their decision-making processes to peers through an online environment are examined in the context of the Heuristic Systematic Model.

METHOD

Messages about treatment decision making were collected from four PCa websites. In total, 137 messages were selected from blogs and online forums and their decision-making processes coded.

RESULTS

Men looking online for information about treatment options for PCa are exposed to a range of decision-making processes. Just under half (49.6%) of the messages reported non-systematic decision processes, with deferral to the doctor and proof of cancer removal being the most common. For systematic processing (36.5%), messages most commonly considered treatment outcomes and side-effects. Processes did not vary between the blogs and online forums.

DISCUSSION AND CONCLUSION

Compared to previous studies far fewer messages reported non-systematic decision processes and only a small number of messages reflected lay beliefs or misbeliefs about PCa treatment. Implications for men and their clinicians of seeking health information online are discussed.

摘要

背景

体验式网站,如留言板和博客,让前列腺癌(PCa)患者能够与同行交流他们的健康决策。这种间接参与公共卫生的形式所涉及的问题还不太清楚。

目的

本文探讨了人们在 PCa 在线留言板上接触到的决策过程类型。在启发式系统模型的背景下,研究了患者通过在线环境向同行报告他们的决策过程以及他们正在做出的治疗选择。

方法

从四个 PCa 网站上收集了关于治疗决策的信息。总共从博客和在线论坛中选择了 137 条消息,并对其决策过程进行了编码。

结果

在网上寻找 PCa 治疗选择信息的男性会接触到一系列的决策过程。近一半(49.6%)的消息报告了非系统的决策过程,其中最常见的是向医生咨询和证明癌症已被切除。对于系统处理(36.5%),消息最常考虑的是治疗结果和副作用。博客和在线论坛之间的处理过程没有差异。

讨论和结论

与之前的研究相比,报告非系统决策过程的消息要少得多,只有少数消息反映了对 PCa 治疗的错误或错误信念。讨论了男性及其临床医生在线寻求健康信息的影响。