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研究电子数据捕获(REDCap)共享数据工具的采购。

Procurement of shared data instruments for Research Electronic Data Capture (REDCap).

机构信息

South Carolina Translational Research Institute, Biomedical Informatics Program, Medical University of South Carolina, 55 Bee St., MSC 200, Charleston, SC 29425, United States.

出版信息

J Biomed Inform. 2013 Apr;46(2):259-65. doi: 10.1016/j.jbi.2012.10.006. Epub 2012 Nov 10.

Abstract

REDCap (Research Electronic Data Capture) is a web-based software solution and tool set that allows biomedical researchers to create secure online forms for data capture, management and analysis with minimal effort and training. The Shared Data Instrument Library (SDIL) is a relatively new component of REDCap that allows sharing of commonly used data collection instruments for immediate study use by research teams. Objectives of the SDIL project include: (1) facilitating reuse of data dictionaries and reducing duplication of effort; (2) promoting the use of validated data collection instruments, data standards and best practices; and (3) promoting research collaboration and data sharing. Instruments submitted to the library are reviewed by a library oversight committee, with rotating membership from multiple institutions, which ensures quality, relevance and legality of shared instruments. The design allows researchers to download the instruments in a consumable electronic format in the REDCap environment. At the time of this writing, the SDIL contains over 128 data collection instruments. Over 2500 instances of instruments have been downloaded by researchers at multiple institutions. In this paper we describe the library platform, provide detail about experience gained during the first 25months of sharing public domain instruments and provide evidence of impact for the SDIL across the REDCap consortium research community. We postulate that the shared library of instruments reduces the burden of adhering to sound data collection principles while promoting best practices.

摘要

REDCap(研究电子数据捕获)是一个基于网络的软件解决方案和工具集,允许生物医学研究人员创建安全的在线表单,以便以最小的努力和培训进行数据捕获、管理和分析。共享数据仪器库(SDIL)是 REDCap 的一个相对较新的组件,允许共享常用的数据收集仪器,以便研究团队立即用于研究。SDIL 项目的目标包括:(1)促进数据字典的重用,减少重复工作;(2)推广使用经过验证的数据收集仪器、数据标准和最佳实践;(3)促进研究合作和数据共享。提交给库的仪器由图书馆监督委员会进行审查,委员会成员来自多个机构,轮流任职,以确保共享仪器的质量、相关性和合法性。该设计允许研究人员在 REDCap 环境中以可消耗的电子格式下载仪器。在撰写本文时,SDIL 包含超过 128 个数据收集仪器。超过 2500 个实例的仪器已被多个机构的研究人员下载。在本文中,我们描述了该库平台,详细介绍了在共享公共领域仪器的头 25 个月中获得的经验,并提供了 SDIL 在 REDCap 联盟研究社区中的影响力的证据。我们假设,共享仪器库在促进最佳实践的同时减轻了遵守良好数据收集原则的负担。

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