• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

研究电子数据捕获(REDCap)共享数据工具的采购。

Procurement of shared data instruments for Research Electronic Data Capture (REDCap).

机构信息

South Carolina Translational Research Institute, Biomedical Informatics Program, Medical University of South Carolina, 55 Bee St., MSC 200, Charleston, SC 29425, United States.

出版信息

J Biomed Inform. 2013 Apr;46(2):259-65. doi: 10.1016/j.jbi.2012.10.006. Epub 2012 Nov 10.

DOI:10.1016/j.jbi.2012.10.006
PMID:23149159
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3600393/
Abstract

REDCap (Research Electronic Data Capture) is a web-based software solution and tool set that allows biomedical researchers to create secure online forms for data capture, management and analysis with minimal effort and training. The Shared Data Instrument Library (SDIL) is a relatively new component of REDCap that allows sharing of commonly used data collection instruments for immediate study use by research teams. Objectives of the SDIL project include: (1) facilitating reuse of data dictionaries and reducing duplication of effort; (2) promoting the use of validated data collection instruments, data standards and best practices; and (3) promoting research collaboration and data sharing. Instruments submitted to the library are reviewed by a library oversight committee, with rotating membership from multiple institutions, which ensures quality, relevance and legality of shared instruments. The design allows researchers to download the instruments in a consumable electronic format in the REDCap environment. At the time of this writing, the SDIL contains over 128 data collection instruments. Over 2500 instances of instruments have been downloaded by researchers at multiple institutions. In this paper we describe the library platform, provide detail about experience gained during the first 25months of sharing public domain instruments and provide evidence of impact for the SDIL across the REDCap consortium research community. We postulate that the shared library of instruments reduces the burden of adhering to sound data collection principles while promoting best practices.

摘要

REDCap(研究电子数据捕获)是一个基于网络的软件解决方案和工具集,允许生物医学研究人员创建安全的在线表单,以便以最小的努力和培训进行数据捕获、管理和分析。共享数据仪器库(SDIL)是 REDCap 的一个相对较新的组件,允许共享常用的数据收集仪器,以便研究团队立即用于研究。SDIL 项目的目标包括:(1)促进数据字典的重用,减少重复工作;(2)推广使用经过验证的数据收集仪器、数据标准和最佳实践;(3)促进研究合作和数据共享。提交给库的仪器由图书馆监督委员会进行审查,委员会成员来自多个机构,轮流任职,以确保共享仪器的质量、相关性和合法性。该设计允许研究人员在 REDCap 环境中以可消耗的电子格式下载仪器。在撰写本文时,SDIL 包含超过 128 个数据收集仪器。超过 2500 个实例的仪器已被多个机构的研究人员下载。在本文中,我们描述了该库平台,详细介绍了在共享公共领域仪器的头 25 个月中获得的经验,并提供了 SDIL 在 REDCap 联盟研究社区中的影响力的证据。我们假设,共享仪器库在促进最佳实践的同时减轻了遵守良好数据收集原则的负担。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/601e/3600393/62afa8168207/nihms422093f3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/601e/3600393/18dac644bbac/nihms422093f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/601e/3600393/341a31d03450/nihms422093f2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/601e/3600393/62afa8168207/nihms422093f3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/601e/3600393/18dac644bbac/nihms422093f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/601e/3600393/341a31d03450/nihms422093f2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/601e/3600393/62afa8168207/nihms422093f3.jpg

相似文献

1
Procurement of shared data instruments for Research Electronic Data Capture (REDCap).研究电子数据捕获(REDCap)共享数据工具的采购。
J Biomed Inform. 2013 Apr;46(2):259-65. doi: 10.1016/j.jbi.2012.10.006. Epub 2012 Nov 10.
2
Making Clinical Data Acquisition Standards Harmonization (CDASH) Electronic Case Report Forms Available on the REDCap Shared Data Instrument Library.在REDCap共享数据仪器库中提供临床数据采集标准协调(CDASH)电子病例报告表。
J Soc Clin Data Manag. 2022 Fall;2(3). doi: 10.47912/jscdm.172. Epub 2022 Dec 8.
3
The process of installing REDCap, a web based database supporting biomedical research: the first year.安装REDCap(一个支持生物医学研究的基于网络的数据库)的过程:第一年
Appl Clin Inform. 2014 Nov 19;5(4):916-29. doi: 10.4338/ACI-2014-06-CR-0054. eCollection 2014.
4
The use of Research Electronic Data Capture (REDCap) software to create a database of librarian-mediated literature searches.使用研究电子数据采集(REDCap)软件创建一个由图书馆员介导的文献检索数据库。
Med Ref Serv Q. 2014;33(3):241-52. doi: 10.1080/02763869.2014.925379.
5
The REDCap consortium: Building an international community of software platform partners.REDCap 联盟:构建软件平台合作伙伴的国际社区。
J Biomed Inform. 2019 Jul;95:103208. doi: 10.1016/j.jbi.2019.103208. Epub 2019 May 9.
6
MiMiR--an integrated platform for microarray data sharing, mining and analysis.MiMiR——一个用于微阵列数据共享、挖掘和分析的集成平台。
BMC Bioinformatics. 2008 Sep 18;9:379. doi: 10.1186/1471-2105-9-379.
7
REDLetr: Workflow and tools to support the migration of legacy clinical data capture systems to REDCap.REDLetr:支持将传统临床数据采集系统迁移至REDCap的工作流程及工具。
Int J Med Inform. 2016 Sep;93:103-10. doi: 10.1016/j.ijmedinf.2016.06.015. Epub 2016 Jun 27.
8
[Introduction to Research Electronic Data Capture (REDCap) and REDCap2SDTM, a Conversion Tool to Facilitate Clinical Research Data Sharing].[研究电子数据采集(REDCap)及REDCap2SDTM介绍,一种促进临床研究数据共享的转换工具]
Brain Nerve. 2017 Jul;69(7):848-855. doi: 10.11477/mf.1416200830.
9
Electronic Data Capture System (REDCap) for Health Care Research and Training in a Resource-Constrained Environment: Technology Adoption Case Study.资源受限环境下用于医疗保健研究与培训的电子数据采集系统(REDCap):技术采用案例研究
JMIR Med Inform. 2022 Aug 30;10(8):e33402. doi: 10.2196/33402.
10
A pragmatic method for transforming clinical research data from the research electronic data capture "REDCap" to Clinical Data Interchange Standards Consortium (CDISC) Study Data Tabulation Model (SDTM): Development and evaluation of REDCap2SDTM.一种将临床研究数据从研究电子数据采集系统(REDCap)转换为临床数据交换标准协会(CDISC)研究数据列表模型(SDTM)的实用方法:REDCap2SDTM的开发与评估
J Biomed Inform. 2017 Jun;70:65-76. doi: 10.1016/j.jbi.2017.05.003. Epub 2017 May 6.

引用本文的文献

1
Replication of Sensor-Based Categorization of Upper-Limb Performance in Daily Life in People Post Stroke and Generalizability to Other Populations.基于传感器的中风后人群日常生活中上肢运动表现分类的复制及对其他人群的可推广性
Sensors (Basel). 2025 Jul 25;25(15):4618. doi: 10.3390/s25154618.
2
Remote analysis and management of sweat biomarkers using a wearable microfluidic sticker in adult cystic fibrosis patients.使用可穿戴微流控贴纸对成年囊性纤维化患者汗液生物标志物进行远程分析和管理。
Proc Natl Acad Sci U S A. 2025 Aug 19;122(33):e2506137122. doi: 10.1073/pnas.2506137122. Epub 2025 Aug 12.
3
A modular pipeline for natural language processing-screened human abstraction of a pragmatic trial outcome from electronic health records.

本文引用的文献

1
Clinical Data Acquisition Standards Harmonization importance and benefits in clinical data management.临床数据采集标准协调在临床数据管理中的重要性和益处。
Perspect Clin Res. 2015 Oct-Dec;6(4):179-83. doi: 10.4103/2229-3485.167101.
2
A partnership approach for Electronic Data Capture in small-scale clinical trials.一种小规模临床试验中电子数据采集的合作方法。
J Biomed Inform. 2011 Dec;44 Suppl 1(Suppl 1):S103-S108. doi: 10.1016/j.jbi.2011.05.008. Epub 2011 May 30.
3
Grid-enabled measures: using Science 2.0 to standardize measures and share data.
一种用于自然语言处理的模块化管道——从电子健康记录中筛选出实用试验结果的人工摘要。
medRxiv. 2025 Jun 24:2025.06.23.25330134. doi: 10.1101/2025.06.23.25330134.
4
Feasibility, Acceptability and Modification of a Post-surgical Telehealth Mindfulness-Based Intervention to Enhance Recovery After Lumbar Spine Surgery: A Prospective Intervention Study.一种基于远程医疗正念的术后干预措施对腰椎手术后恢复的可行性、可接受性及调整:一项前瞻性干预研究
Glob Adv Integr Med Health. 2025 May 21;14:27536130251344843. doi: 10.1177/27536130251344843. eCollection 2025 Jan-Dec.
5
Supporting rapid innovation in research data capture and management: the REDCap external module framework.支持研究数据采集与管理的快速创新:REDCap外部模块框架
J Am Med Inform Assoc. 2025 Jul 1;32(7):1149-1156. doi: 10.1093/jamia/ocaf073.
6
Tools for coordinating measurement use in science education and training.科学教育与培训中用于协调测量使用的工具。
J Microbiol Biol Educ. 2025 Aug 21;26(2):e0006025. doi: 10.1128/jmbe.00060-25. Epub 2025 May 7.
7
Adolescent-Initiated Retrospective Glucose Data Review is Associated With Improved Glycemia in Type 1 Diabetes Mellitus.青少年发起的回顾性血糖数据审查与1型糖尿病患者血糖改善相关。
Pediatr Diabetes. 2024 Oct 24;2024:5218915. doi: 10.1155/2024/5218915. eCollection 2024.
8
Treatment strategies and LDL cholesterol target attainment in patients with statin intolerance: Insights from the multicentre statin intolerance registry.他汀不耐受患者的治疗策略及低密度脂蛋白胆固醇目标达成情况:来自多中心他汀不耐受登记研究的见解
Am J Prev Cardiol. 2025 Mar 1;21:100953. doi: 10.1016/j.ajpc.2025.100953. eCollection 2025 Mar.
9
What research participants say about their research experiences in Empowering the Participant Voice: Outcomes and actionable data.研究参与者对他们在“增强参与者声音:成果与可操作数据”中的研究经历有何看法。
J Clin Transl Sci. 2025 Jan 10;9(1):e43. doi: 10.1017/cts.2025.3. eCollection 2025.
10
Standards and infrastructure for multisite deployment of the research participant perception survey.研究参与者感知调查多站点部署的标准与基础设施
JAMIA Open. 2025 Mar 12;8(2):ooaf017. doi: 10.1093/jamiaopen/ooaf017. eCollection 2025 Apr.
网格启用措施:利用科学 2.0 来标准化措施并共享数据。
Am J Prev Med. 2011 May;40(5 Suppl 2):S134-43. doi: 10.1016/j.amepre.2011.01.004.
4
Clinical research informatics: challenges, opportunities and definition for an emerging domain.临床研究信息学:一个新兴领域的挑战、机遇与定义
J Am Med Inform Assoc. 2009 May-Jun;16(3):316-27. doi: 10.1197/jamia.M3005. Epub 2009 Mar 4.
5
Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.研究电子数据采集(REDCap)——一种用于提供转化研究信息学支持的元数据驱动方法和工作流程。
J Biomed Inform. 2009 Apr;42(2):377-81. doi: 10.1016/j.jbi.2008.08.010. Epub 2008 Sep 30.
6
Use of informatics and information technologies in the clinical research enterprise within US academic medical centers: progress and challenges from 2005 to 2007.美国学术医疗中心临床研究机构中信息学与信息技术的应用:2005年至2007年的进展与挑战
J Investig Med. 2008 Jun;56(5):770-9. doi: 10.2310/JIM.0b013e3175d7b4.
7
Reducing errors from the electronic transcription of data collected on paper forms: a research data case study.减少纸质表格收集数据的电子转录错误:一项研究数据案例研究
J Am Med Inform Assoc. 2008 May-Jun;15(3):386-9. doi: 10.1197/jamia.M2381. Epub 2008 Feb 28.
8
Data standards in clinical research: gaps, overlaps, challenges and future directions.临床研究中的数据标准:差距、重叠、挑战与未来方向。
J Am Med Inform Assoc. 2007 Nov-Dec;14(6):687-96. doi: 10.1197/jamia.M2470. Epub 2007 Aug 21.
9
The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.患者报告结局测量信息系统(PROMIS):美国国立卫生研究院路线图合作组头两年的进展情况
Med Care. 2007 May;45(5 Suppl 1):S3-S11. doi: 10.1097/01.mlr.0000258615.42478.55.
10
Implementation of electronic data capture systems: barriers and solutions.电子数据捕获系统的实施:障碍与解决方案。
Contemp Clin Trials. 2007 May;28(3):329-36. doi: 10.1016/j.cct.2007.01.001. Epub 2007 Jan 11.