Institute of Psychiatry, King's College London, London SE5 8AF, UK.
Epilepsy Behav. 2012 Dec;25(4):529-33. doi: 10.1016/j.yebeh.2012.09.034. Epub 2012 Nov 13.
Half of the people with epilepsy (PWE) in the UK experience seizures and 13-18% attend emergency medical services (EMS) annually. The majority of attendances are regarded as clinically unjustified. This study describes PWE explanations for using EMS. A nested qualitative study, part of a larger study based in three South London hospitals, was conducted. Semi-structured interviews were recorded, transcribed, and analyzed thematically. A seizure alone was not the main explanation for attending EMS; knowledge, experience, and confidence of those nearby on what to do and seizure context were important. Additionally, fears of sudden death held by the PWE and others were reported. From the patients' perspective, use of EMS is regarded as appropriate when they are away from home or someone nearby lacks knowledge of seizure management. Hospitals could provide regular group sessions on seizure management for PWE and their significant others, in which fears are discussed and evaluated.
英国有一半的癫痫患者 (PWE) 会出现癫痫发作，每年有 13-18% 的人会前往急诊医疗服务 (EMS)。大多数就诊被认为是没有临床依据的。本研究描述了 PWE 使用 EMS 的解释。这是一项嵌套的定性研究，是基于伦敦南部三家医院的更大研究的一部分。进行了半结构化访谈，并记录、转录和主题分析。单独的癫痫发作并不是前往 EMS 的主要原因；附近的人对该做什么以及发作背景的了解、经验和信心很重要。此外，还报告了 PWE 和其他人对突然死亡的恐惧。从患者的角度来看，当他们离家或附近没有人了解癫痫管理时，使用 EMS 被认为是合适的。医院可以为 PWE 及其重要他人定期举办癫痫管理小组会议，讨论和评估他们的恐惧。
