Ege University, Izmir, Turkey.
Respir Med. 2012 Dec;106 Suppl 2:S60-74. doi: 10.1016/S0954-6111(12)70015-X.
Although COPD is a debilitating pulmonary condition, many studies have shown awareness of the disease to be low. This article presents data on attitudes and beliefs about COPD in subjects with respiratory symptoms participating in the BREATHE study in the Middle East and North Africa region. This study was a large general population survey of COPD conducted in ten countries of the region (Algeria, Egypt, Jordan, Lebanon, Morocco, Saudi Arabia, Syria, Tunisia, Turkey and United Arab Emirates), together with Pakistan, using a standardised methodology. A total of 62,086 subjects were screened, of whom 2,187 fulfilled the "epidemiological" definition of COPD. A detailed questionnaire was administered to these subjects, which documented knowledge about the disease, attitudes to care, beliefs about COPD and satisfaction with treatment. 1,392 subjects were analysable. Overall, 58.6% of subjects claimed to be very well or adequately informed about their respiratory condition. Two-thirds of subjects reported receiving information about COPD from their physician and 10.6% from television; the internet was cited by 6% and other health professionals or patient associations by < 1%. Several inappropriate beliefs were identified, with 38.9% of respondents believing that there were no truly effective treatments, 73.7% believing that their respiratory condition would get progressively worse regardless of treatment and 29.6% being unsure what had caused their respiratory problems. Although 81% of respondents believed that smoking was the cause of most cases of COPD in general, only 51% accepted that it was the cause of their own respiratory problems. Treatment satisfaction was relatively high, with 83.2% of respondents somewhat or very satisfied with their physician's management, in spite of the fact that only 47.5% considered that their physician's advice had helped them manage their respiratory symptoms a lot. In conclusion, awareness of COPD in the region is suboptimal and treatment expectations are undervalued. Better patient education and more effective patient-physician communication are clearly required.
虽然 COPD 是一种使人衰弱的肺部疾病，但许多研究表明，人们对这种疾病的认识很低。本文介绍了在中东和北非地区参与 BREATHE 研究的有呼吸系统症状的受试者对 COPD 的态度和信念方面的数据。这项研究是在该地区的十个国家（阿尔及利亚、埃及、约旦、黎巴嫩、摩洛哥、沙特阿拉伯、叙利亚、突尼斯、土耳其和阿拉伯联合酋长国）以及巴基斯坦进行的一项关于 COPD 的大型一般人群调查，采用了标准化的方法。共有 62086 名受试者接受了筛选，其中 2187 名符合 COPD 的“流行病学”定义。对这些受试者进行了详细的问卷调查，记录了他们对疾病的了解、对护理的态度、对 COPD 的看法以及对治疗的满意度。其中 1392 名受试者可进行分析。总体而言，58.6%的受试者表示对自己的呼吸状况非常了解或了解程度适中。三分之二的受试者报告从医生那里获得 COPD 信息，10.6%从电视上获得；6%的人提到互联网，不到 1%的人提到其他卫生专业人员或患者协会。确定了一些不恰当的信念，38.9%的受访者认为没有真正有效的治疗方法，73.7%的受访者认为无论治疗与否，他们的呼吸状况都会恶化，29.6%的人不确定是什么导致了他们的呼吸问题。尽管 81%的受访者认为吸烟是导致大多数 COPD 的原因，但只有 51%的人接受吸烟是导致他们自己呼吸问题的原因。治疗满意度相对较高，83.2%的受访者对医生的治疗管理有些满意或非常满意，尽管只有 47.5%的受访者认为医生的建议对他们管理呼吸症状有很大帮助。总之，该地区对 COPD 的认识不足，对治疗的期望被低估。显然需要更好的患者教育和更有效的医患沟通。
