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认识到咨询中“家庭暂停”的重要性:一项探索性定性研究。

Recognising the importance of 'family time-out' in consultations: an exploratory qualitative study.

机构信息

School of Social and Community Medicine, University of Bristol, Bristol, UK.

出版信息

BMJ Open. 2013 Jan 16;3(1):e002144. doi: 10.1136/bmjopen-2012-002144.

Abstract

OBJECTIVES

Patients are often accompanied by family or companions during consultations, but little is known about how this might influence the process. We explored how the presence of a companion in a consultation contributes to communication and the decision-making process.

DESIGN

Observational study.

SETTING

A teaching hospital and a district general hospital in south-west England.

PARTICIPANTS

31 patients and their physicians were observed during consultations in which decisions to undergo palliative chemotherapy were made. Each patient was accompanied by at least one companion.

OUTCOME MEASURES

Communication patterns between physicians, patients and companions.

RESULTS

In addition to standard patient/physician interactions, patients and companions were often found to discuss medical information and exchange opinions between themselves without the physician actively participating. We called these instances 'family time-out'. On the occasion of disagreement between patients and companions about preferred treatment options, physicians and patients were able to agree the decision while acknowledging the differences in opinion.

CONCLUSIONS

Instances of 'family time-out' may contribute to better consultation outcomes because they are understood and supported by the patient's social system. This study highlights the potentially important role of exchanges between patients and companions during consultations and how physicians may benefit from observation of such exchanges. We recommend testing the value of making space for family time-out during consultations. Also, we recommend further study into the medical ethics of family time-out. While the focus here is on palliative chemotherapy, this finding has implications for other consultations, particularly those involving difficult treatment decisions.

摘要

目的

患者在就诊时常有家属或陪伴者陪同,但人们对这种情况如何影响诊疗过程知之甚少。我们旨在探讨在就诊时陪伴者的存在如何影响医患沟通和决策过程。

设计

观察性研究。

地点

英格兰西南部一所教学医院和一家地区综合医院。

参与者

31 名患者及其主治医生参与了本次研究,他们在决定是否接受姑息化疗的就诊过程中被观察。每位患者至少有一名陪伴者陪同。

主要观察指标

医生、患者和陪伴者之间的沟通模式。

结果

除了标准的医患互动之外,我们还发现患者和陪伴者经常会自行讨论医疗信息并交流意见,而无需医生积极参与。我们将这些情况称为“家庭暂停”。在患者和陪伴者对首选治疗方案存在分歧的情况下,医生和患者能够在承认意见分歧的同时,就决策达成一致。

结论

“家庭暂停”的出现可能有助于改善就诊结果,因为这一过程得到了患者社会系统的理解和支持。本研究强调了患者和陪伴者在就诊期间交流的潜在重要性,以及医生从观察此类交流中受益的可能性。我们建议在就诊期间尝试为“家庭暂停”留出空间,并进一步研究“家庭暂停”的医学伦理问题。虽然这里的重点是姑息化疗,但这一发现对其他涉及困难治疗决策的就诊也具有启示意义。

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