Yadav Ravi, Shukla Garima, Goyal Vinay, Singh Sumit, Behari Madhuri
Department of Neurology, All India Institute of Medical Sciences, New Delhi, India.
Ann Indian Acad Neurol. 2012 Oct;15(4):294-6. doi: 10.4103/0972-2327.104339.
Few studies have been done to see the level of knowledge among patients and caregivers about Parkinson's disease (PD).
The aim of the current study was to determine the knowledge of PD among patients and caregivers at a movement disorder clinic in India.
A tertiary care neurology facility in north India.
We conducted a questionnaire based interview among the subjects collected on the annual PD day in 2006.
Out of 200 questionnaires that were distributed 172 subjects responded. Of these, there were 103 (59.8%) patients with PD and 69 (40.11%) caregivers. Mean age of the patients and caregivers was 55.4 ± 13.3 years and 49.4 ± 15.9 years respectively. Mean duration of PD was 6.8 ± 4.7 years (range-21). Ninety nine patients out of the 103 (96.1%) and 57 caregivers out of 69 (82.6%) had previously attended the PD education program. High scores (>90%) were obtained to questions on body parts affected, pathology in PD, main drug treatment, epidemiology and effect of exercise. Low scores were seen to questions on surgery in PD and biochemical abnormality in PD. No significant difference was noted in correct answers among patients and caregivers on duration of PD.
Patients and caregivers had adequate knowledge about PD. Patient and caregiver education programs may be useful in imparting knowledge about PD.
很少有研究去了解患者及照料者对帕金森病（PD）的知识水平。
本研究的目的是确定印度一家运动障碍诊所中患者及照料者对帕金森病的了解情况。
印度北部的一家三级护理神经科机构。
我们在2006年帕金森病日收集的受试者中进行了基于问卷的访谈。
在分发的200份问卷中，172名受试者做出了回应。其中，有103名（59.8%）帕金森病患者和69名（40.11%）照料者。患者及照料者的平均年龄分别为55.4±13.3岁和49.4±15.9岁。帕金森病的平均病程为6.8±4.7年（范围为2 - 1年）。103名患者中有99名（96.1%）以及69名照料者中有57名（82.6%）之前参加过帕金森病教育项目。关于受影响的身体部位、帕金森病的病理学、主要药物治疗、流行病学及运动效果的问题获得了高分（>90%）。关于帕金森病手术及帕金森病生化异常的问题得分较低。在帕金森病病程的正确答案方面，患者和照料者之间未发现显著差异。
患者及照料者对帕金森病有足够的了解。患者及照料者教育项目可能有助于传授帕金森病相关知识。
