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验证中国台湾地区创伤性脑损伤患者的生活质量。

Validation of the quality of life after brain injury in Chinese persons with traumatic brain injury in Taiwan.

机构信息

Institute of Injury Prevention and Control (Drs Lin, Chu, Chiu, and Lin), and School of Public Health (Dr Chu), College of Public Health and Nutrition, Taipei Medical University, and Department of Physical Medicine and Rehabilitation, Wan-Fang Hospital (Dr Lin), Taipei, and Department of Biostatistics, College of Public Health, China Medical University, Taichung (Dr Liang), and Department of Neurosurgery, Shuang-Ho Hospital, New Taipei City (Dr Chiu), Taiwan, Republic of China.

出版信息

J Head Trauma Rehabil. 2014 Jan-Feb;29(1):E37-47. doi: 10.1097/HTR.0b013e3182816363.

DOI:10.1097/HTR.0b013e3182816363
PMID:23474879
Abstract

OBJECTIVE

To determine the psychometric properties of the Quality of Life After Brain Injury (QOLIBRI) in Chinese persons with traumatic brain injury (TBI) in Taiwan.

PARTICIPANTS

Three hundred one patients with TBI were interviewed face-to-face at baseline; of these, 132 completed a follow-up assessment 1 year later.

SETTINGS

Neurosurgery clinics of 6 teaching hospitals in northern Taiwan.

MEASURE

The 37-item QOLIBRI, including 6 domains of Cognition, Self, Daily Life and Autonomy, Social Relationships, Emotions, and Physical Problems.

RESULTS

A small percentage (<1%) of responses were missing, except the Sex Life item under the Social domain (5.9%). The QOLIBRI achieved adequate percentages for the floor value (0%-4%), ceiling value (1%-3.3%), internal consistency (0.79-0.95), and test-retest reliability (0.81-0.89). For construct validity, correlation coefficients (rs) for the QOLIBRI domains and selected clinical measures conceptually related to that domain were all 0.4 or more, except rs for QOLIBRI Cognition and Mini-Mental State Examination scores. A principal components analysis found that one item (Loneliness) of the Emotions domain did not converge with its corresponding domain of the original QOLIBRI (loading score <0.4). Effect sizes of responsiveness to changes in the Glasgow Outcome Scale-Extended over the 1-year period were clinically meaningful for all the QOLIBRI domains except the Emotions domain.

CONCLUSION

With modifications to the Emotions domain, the QOLIBRI would be suitable for use with Chinese people in Taiwan who have TBI.

摘要

目的

确定生活质量量表(QOLIBRI)在台湾创伤性脑损伤(TBI)患者中的心理测量特性。

参与者

301 名 TBI 患者在基线时进行了面对面访谈;其中 132 名患者在 1 年后完成了随访评估。

地点

台湾北部 6 所教学医院的神经外科诊所。

措施

37 项 QOLIBRI,包括认知、自我、日常生活和自主、社会关系、情绪和身体问题 6 个领域。

结果

除了社会领域的性生活项目(5.9%)外,几乎没有(<1%)缺失的回答。QOLIBRI 达到了地板值(0%-4%)、天花板值(1%-3.3%)、内部一致性(0.79-0.95)和测试-重测信度(0.81-0.89)的适当百分比。对于结构有效性,与该领域概念相关的 QOLIBRI 领域和选定的临床测量的相关系数(rs)均为 0.4 或更高,除了 QOLIBRI 认知和简易精神状态检查分数的 rs。主成分分析发现,情绪领域的一个项目(孤独)与其原始 QOLIBRI 的相应领域没有收敛(负荷得分<0.4)。格拉斯哥结局量表扩展在 1 年内变化的反应度的效应大小对于除情绪领域外的所有 QOLIBRI 领域都具有临床意义。

结论

对情绪领域进行修改后,QOLIBRI 将适合台湾 TBI 患者使用。

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