School of Psychology, University of Sussex, Brighton, East Sussex, UK.
BMJ Open. 2013 Apr 2;3(4). doi: 10.1136/bmjopen-2012-002487. Print 2013.
To assess parents' first experiences of their very preterm babies and the neonatal intensive care unit (NICU).
Qualitative study using semistructured interviews.
32 mothers and 7 fathers of very preterm babies (<32 weeks gestation).
Three neonatal units in tertiary care hospitals in South East England.
Five themes were identified. The first describes parents' blurred recall of the birth. The second shows the anticipation of seeing and touching their baby for the first time was characterised by contrasting emotions, with some parents feeling scared and others excited about the event. The third theme describes parents' first sight and touch of their babies and their 'rollercoaster' of emotions during this time. It also highlights the importance of touch to trigger and strengthen the parent-baby bond. However, some parents were worried that touching or holding the baby might transmit infection or interfere with care. The fourth theme captures parents' impressions of NICU and how overwhelming this was particularly for parents who had not toured NICU beforehand or whose first sight of their baby was on NICU. The final theme captures unique experiences of fathers, in particular that many felt excluded and confused about their role.
This study informs family-centred care by providing insight into the experiences of parents of very preterm infants at a time when they are most in need of support. Clinical implications include the importance of offering parents preparatory tours of the NICU and including fathers.
评估父母对其极低出生体重儿(<32 周)及其新生儿重症监护病房(NICU)的最初体验。
使用半结构式访谈的定性研究。
32 名极低出生体重儿的母亲和 7 名父亲。
英格兰东南部三家三级保健医院的三家新生儿病房。
确定了五个主题。第一个主题描述了父母对分娩过程记忆模糊。第二个主题表明,首次看到和触摸婴儿的预期会产生相互矛盾的情绪,一些父母对这一事件感到害怕,而另一些父母则感到兴奋。第三个主题描述了父母第一次看到和触摸他们的婴儿,以及在此期间他们情绪的“过山车”。它还强调了触摸对触发和加强父母与婴儿之间的联系的重要性。然而,一些父母担心触摸或抱着婴儿会传播感染或干扰护理。第四个主题捕捉到父母对 NICU 的印象,以及对那些之前没有参观过 NICU 或第一次看到婴儿就在 NICU 的父母来说,NICU 是多么令人不知所措。最后一个主题捕捉到了父亲的独特体验,尤其是许多父亲感到被排斥和对自己的角色感到困惑。
本研究通过深入了解父母在最需要支持的时候对极低出生体重儿的体验,为以家庭为中心的护理提供了信息。临床意义包括为父母提供 NICU 预备参观,并包括父亲在内的重要性。