Cooper E R
Department of Pediatric Infectious Diseases, Boston City Hospital, Boston University School of Medicine, Mass.
Pediatrician. 1990;17(2):118-23.
Caring for HIV-infected children under 13 years of age poses a serious and steadily increasing challenge to our society. Children with AIDS face devastating medical and psychosocial problems. Because of the unique implications for the entire family when a child is found to be HIV-infected, the health care profession is obliged to confront complex legal and psychosocial issues heretofore unparalleled in modern medicine. Decisions that concern schooling and daycare for the asymptomatic but HIV-seropositive individual are often influenced more by public frenzy than scientific information. Issues regarding reproductive choice and responsible parenthood are all confounded by debilitating and eventually fatal illness in infected parents. Problems of custody and foster care require innovative strategies to avoid further burden to an already stressed system. AIDS has become a disease for which research is standard of care. Access to experimental protocols is complicated by geographic location, public funding, and complexities of informed consent. The responsibility of the physician to an individual patient must be considered, and must be given its proper place within the broader responsibility to science and society.
照顾13岁以下感染艾滋病毒的儿童给我们的社会带来了严峻且不断加剧的挑战。患有艾滋病的儿童面临着毁灭性的医疗和心理社会问题。由于当发现儿童感染艾滋病毒时对整个家庭有着独特的影响,医疗保健行业不得不面对现代医学中前所未有的复杂法律和心理社会问题。对于无症状但艾滋病毒血清呈阳性的个体,有关上学和日托的决定往往更多地受到公众狂热情绪的影响,而非科学信息。生殖选择和负责任育儿等问题都因受感染父母日益衰弱并最终致命的疾病而变得复杂。监护权和寄养问题需要创新策略,以避免给本已不堪重负的系统带来进一步负担。艾滋病已成为一种研究即标准治疗的疾病。获取实验方案因地理位置、公共资金以及知情同意的复杂性而变得复杂。必须考虑医生对个体患者的责任,并且必须在对科学和社会的更广泛责任中给予其应有的地位。