Lindberg Nina, Berglund Anna-Lena
Department of Plastic and Reconstructive Surgery, Oslo University Hospital, Oslo, Norway.
Scand J Caring Sci. 2014 Mar;28(1):66-73. doi: 10.1111/scs.12048. Epub 2013 Apr 22.
Cleft lip and palate (CLP) in newborns have implications for feeding. It might impede the child's attempts to seal around the nipple and to create intraoral pressure. Parents needed support and information about feeding after birth. Mothers' own experiences and how they coped with the challenges related to feeding have not been extensively studied. The aims of this study were twofold: to describe the experiences of feeding for mothers of children born with CLP and to elucidate how the mothers cope with the challenges related to feeding. A qualitative descriptive method and phenomenographic analysis were used to analyse the narratives. Twelve mothers of babies with CLP were strategically selected and interviewed. A semi-structured interview guide was used. Ethical approval for the study was granted by the local ethical committee. The findings resulted in two main categories and five subcategories. The first main category, Being a capable and good mother, included descriptions associated with the mothers' strong desire to do what was best for the child and about how they experienced feeding. The second main category, Coping with the challenges related to feeding, included descriptions of what the mothers perceived as important in order to cope with the challenges related to feeding; of how personal resources were used; of the significance of the father and close family; and of how healthcare professionals contributed. In conclusion, mothers of children born with CLP were in need of individual information by healthcare professionals with expertise, at the time of the diagnosis and until the feeding was manageable. Furthermore, the mothers' personal resources, the fathers and immediate family were of major importance for the mothers to cope with challenges related to feeding.
新生儿唇腭裂对喂养有影响。它可能会妨碍孩子围绕乳头密封并产生口腔内压力的尝试。父母在孩子出生后需要关于喂养的支持和信息。母亲自身的经历以及她们如何应对与喂养相关的挑战尚未得到广泛研究。本研究的目的有两个：描述唇腭裂患儿母亲的喂养经历，并阐明母亲如何应对与喂养相关的挑战。采用定性描述方法和现象学分析来分析这些叙述。从唇腭裂患儿的母亲中策略性地选取了12位进行访谈。使用了半结构化访谈指南。该研究获得了当地伦理委员会的伦理批准。研究结果产生了两个主要类别和五个子类别。第一个主要类别“成为有能力且优秀的母亲”，包括与母亲们强烈希望为孩子做最好的事情以及她们对喂养的体验相关的描述。第二个主要类别“应对与喂养相关的挑战”，包括母亲们认为应对与喂养相关挑战时重要的方面的描述；个人资源如何被利用；父亲和亲密家庭的重要性；以及医疗保健专业人员的贡献。总之，唇腭裂患儿的母亲在诊断时以及喂养问题得到解决之前，需要具有专业知识的医疗保健专业人员提供个性化信息。此外，母亲的个人资源、父亲和直系亲属对于母亲应对与喂养相关的挑战至关重要。
