Cedars-Sinai Heart Institute, Cedars-Sinai Medical Center, Los Angeles, CA, USA.
Rev Cardiovasc Med. 2013;14(1):41-8. doi: 10.3909/ricm0635.
Heart failure (HF) is the most common reason for hospital admission for patients older than 65 years. With an aging population and improving survival in heart failure patients, the number of people living with HF continues to grow. As this population increases, the importance of treating symptoms of fatigue, dyspnea, pain, and depression that diminish the quality of life in HF patients becomes increasingly important. Palliative care has been shown to help alleviate these symptoms and improve patients' satisfaction with the care they receive. Despite this growing body of evidence, palliative care consultation remains underutilized and is not standard practice in the management of HF. With an emphasis on communication, symptom management, and coordinated care, palliative care provides an integrated approach to support patients and families with chronic illnesses. Early communication with patients and families regarding the unpredictable nature of HF and the increased risk of sudden cardiac death enables discussions around advanced care directives, health care proxies, and deactivation of permanent pacemakers or implantable cardioverter defibrillators. Cardiologists and primary care physicians who are comfortable initiating these discussions are encouraged to do so; however, many fear destroying hope and are uncertain how to discuss end-of-life issues. Thus, in order to facilitate these discussions and establish an appropriate relationship, we recommend that patients and families be introduced to a palliative care team at the earliest appropriate time after diagnosis.
心力衰竭(HF)是 65 岁以上患者住院的最常见原因。随着人口老龄化和心力衰竭患者生存率的提高,患有心力衰竭的人数持续增加。随着这一人群的增加,治疗疲劳、呼吸困难、疼痛和抑郁等症状的重要性日益增加,这些症状会降低心力衰竭患者的生活质量。姑息治疗已被证明有助于缓解这些症状,并提高患者对所接受护理的满意度。尽管有越来越多的证据表明,姑息治疗咨询的利用率仍然很低,并且不是心力衰竭管理的标准做法。姑息治疗强调沟通、症状管理和协调护理,为患有慢性疾病的患者和家庭提供了一种综合的支持方法。早期与患者和家属就心力衰竭的不可预测性以及心脏性猝死风险增加进行沟通,使他们能够讨论高级护理指令、医疗代理人以及永久性起搏器或植入式心脏除颤器的停用问题。鼓励那些能够轻松开展这些讨论的心脏病专家和初级保健医生这样做;然而,许多人担心破坏希望,并且不确定如何讨论临终问题。因此,为了促进这些讨论并建立适当的关系,我们建议在诊断后尽早向患者和家属介绍姑息治疗团队。