Xu Richard Huan, Xu Yuanshuo, Zhao Mengping, Liu Nan, Wang Pei, Liang Xiao, Zhou Lingming
Department of Rehabilitation Sciences, Faculty of Health and Social Sciences, Hong Kong Polytechnic University, Kowloon, Hong Kong.
School of Public Health, Lanzhou University, Lanzhou, China.
Health Qual Life Outcomes. 2025 May 9;23(1):49. doi: 10.1186/s12955-025-02379-7.
This study aims to translate and validate the CarerQol in a sample of informal caregivers in China.
The CarerQol was translated following a standard process. Validation data was collected from multiple sources, including hospitals, patient associations, and community health centers between September 2023 and December 2024 in China. Caregivers of individuals with disability or long-term care needs were recruited. The psychometric properties of the CarerQol-7D were evaluated through ceiling and floor effects, factorial structure, convergent and divergent validity, known-groups validity, and test-retest reliability.
A total of 324 participants completed the survey and provided validated responses. The mean CarerQol level sum score was 12.8 (SD = 2.9). The CarerQol-7D showed no ceiling or floor effects at either dimension or scale levels. Test-retest reliability of the CarerQol-7D was satisfactory, as supported by ICC and Gwet's AC1 measures. Correlation analysis confirmed all hypothesized pairs of dimensions and level sum scores/utility scores between CarerQol-7D, SF-6Dv2, and ICECAP-A. The CarerQol-7D successfully distinguished between risk groups through ANOVA testing. Confirmatory factor analysis revealed that a one-factor model of the CarerQol-7D fit the data.
This study provides the Chinese version of the CarerQol and confirms its sound psychometric properties for informal caregivers in China. These findings demonstrate the CarerQol's value in cost-effectiveness analyses of caregiving interventions and strategies.
本研究旨在对中国的一组非正式照料者样本进行《照料者生活质量量表》(CarerQol)的翻译与验证。
按照标准流程对《照料者生活质量量表》进行翻译。于2023年9月至2024年12月期间在中国从多个来源收集验证数据,包括医院、患者协会和社区卫生中心。招募残疾或有长期护理需求者的照料者。通过天花板效应和地板效应、因子结构、聚合效度和区分效度、已知组效度以及重测信度来评估《照料者生活质量量表-7维度》(CarerQol-7D)的心理测量特性。
共有324名参与者完成了调查并提供了有效回复。照料者生活质量量表平均总分是12.8(标准差=2.9)。《照料者生活质量量表-7维度》在维度或量表层面均未显示出天花板效应或地板效应。《照料者生活质量量表-7维度》的重测信度令人满意,组内相关系数(ICC)和格韦特AC1测量值均证实了这一点。相关性分析证实了《照料者生活质量量表-7维度》、《简明健康状况调查问卷-6维度第二版》(SF-6Dv2)和《成人综合成本效用自评问卷》(ICECAP-A)之间所有假设的维度对以及水平总分/效用得分对。通过方差分析测试,《照料者生活质量量表-7维度》成功区分了风险组。验证性因子分析表明,《照料者生活质量量表-7维度》的单因素模型与数据拟合良好。
本研究提供了《照料者生活质量量表》的中文版,并证实了其在中国非正式照料者中良好的心理测量特性。这些发现证明了《照料者生活质量量表》在照料干预措施和策略的成本效益分析中的价值。