Centre of Academic Primary Care, University of Aberdeen, Aberdeen, UK.
J Am Med Inform Assoc. 2014 Feb;21(e1):e6-10. doi: 10.1136/amiajnl-2012-001575. Epub 2013 May 28.
To review the literature on the views of healthcare professionals to the linkage of healthcare data and to identify any potential barriers and/or facilitators to participation in a data linkage system.
Published papers describing the views of healthcare professionals (HCPs) to data sharing and linkage were identified by searches of Medline, EMBASE, SCOPUS, CINAHL, and PsychINFO. The searches were limited to papers published in the English language from 2001 to 2011.
A total of 2917 titles were screened. From these, 18 papers describing the views of HCPs about data linkage or data sharing of routinely collected healthcare data at an individual patient level were included. Views were generally positive, and potential benefits were reported. Facilitators included having trust in the system including data governance, reliability, and feedback. Some negative views, identified as barriers were also expressed including costs, data governance, technical issues, and privacy concerns. Effects on the physician-patient relationship, and workload were also identified as deterrent.
From the published literature included in this review, the views of HCPs were in general positive towards data sharing for public health purposes. The identification of barriers to contributing to a data linkage system allows these to be addressed in a planned data linkage project for pharmacovigilance. The main barriers identified were concerns about costs, governance and interference with the prescriber-patient relationship. These would have to be addressed if healthcare professionals are to support a data linkage system to improve patient safety.
综述医疗保健专业人员对医疗数据链接的看法，并确定参与数据链接系统的任何潜在障碍和/或促进因素。
通过对 Medline、EMBASE、SCOPUS、CINAHL 和 PsychINFO 的检索，确定了描述医疗保健专业人员（HCP）对数据共享和链接的看法的已发表论文。检索范围限于 2001 年至 2011 年期间以英文发表的论文。
共筛选出 2917 个标题。从中，纳入了 18 篇描述 HCP 对数据链接或个体患者水平常规收集的医疗保健数据的数据共享的看法的论文。意见普遍是积极的，并报告了潜在的好处。促进因素包括对系统的信任，包括数据治理、可靠性和反馈。还表达了一些被认为是障碍的负面观点，包括成本、数据治理、技术问题和隐私问题。对医患关系和工作量的影响也被认为是阻碍因素。
从本综述中纳入的已发表文献来看，HCP 对出于公共卫生目的共享数据的看法总体上是积极的。确定参与数据链接系统的障碍，可以在计划用于药物警戒的数据链接项目中解决这些障碍。确定的主要障碍是对成本、治理和对处方医生-患者关系的干扰的担忧。如果要让医疗保健专业人员支持改善患者安全的数据链接系统，则必须解决这些问题。
