Mogos Mulubrhan F, August Euna M, Salinas-Miranda Abraham A, Sultan Dawood H, Salihu Hamisu M
Maternal & Child Health Comparative Effectiveness Research Group, Department of Epidemiology & Biostatistics, College of Public Health, University of South Florida, 13201 Bruce B. Downs Blvd., MDC 56, Tampa, FL 33612, USA.
Appl Res Qual Life. 2013 Jun 1;8(2):219-250. doi: 10.1007/s11482-012-9188-4.
Quality of life has emerged as an essential health component that broadens the traditionally narrow concerns focused on only morbidity and life expectancy. Although a growing number of tools to measure quality of life are in circulation, there is a lack of guidelines as well as rigorous assessment for their use with pregnant and postpartum populations. It is also unclear whether these instruments could validly be employed to measure patient-reported outcomes in comparative effectiveness research of maternal care interventions. This paper reviews articles cited in CINAHL, COCHRANE, EMBASE, PSYCINFO, and PUBMED that addressed quality of life in pregnant and postpartum populations. Instruments used to measure quality of life in selected articles were assessed for their adherence to international guidelines for health outcomes instrument development and validation. The authors identified 129 articles that addressed quality of life in pregnant and/or postpartum women. Out of these, only 64 quality (generic and specific) scales were judged relevant to be included in this study. Analysis of measurement scales used in the pregnant and/or postpartum populations revealed important validity, reliability and psychometric inadequacies that negate their use in comparative effectiveness analysis in pregnant and post-partum populations. Valid, reliable, and responsive instruments to measure patient-reported outcomes in pregnant and postpartum populations are lacking. To demonstrate the effectiveness of various treatment and prevention programs, future research to develop and validate a robust and responsive quality of life measurement scale in pregnant and postpartum populations is needed.
生活质量已成为健康的一个重要组成部分，它拓宽了传统上仅关注发病率和预期寿命的狭隘关注点。尽管越来越多衡量生活质量的工具在流通使用，但对于在孕妇和产后人群中使用这些工具，缺乏相关指南以及严格的评估。此外，在孕产妇护理干预的比较效果研究中，这些工具是否能有效用于衡量患者报告的结果也尚不清楚。本文回顾了CINAHL、COCHRANE、EMBASE、PSYCINFO和PUBMED中引用的关于孕妇和产后人群生活质量的文章。对所选文章中用于衡量生活质量的工具，根据其是否符合健康结果工具开发和验证的国际指南进行了评估。作者共识别出129篇关于孕妇和/或产后妇女生活质量的文章。其中，只有64种质量（通用和特定）量表被判定与本研究相关。对孕妇和/或产后人群使用的测量量表的分析揭示了重要的效度、信度和心理测量学方面的不足，这否定了它们在孕妇和产后人群比较效果分析中的使用。目前缺乏有效、可靠且灵敏的工具来测量孕妇和产后人群患者报告的结果。为了证明各种治疗和预防方案的有效性，未来需要开展研究，开发并验证一种适用于孕妇和产后人群的强大且灵敏的生活质量测量量表。
