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自闭症患者兄弟姐妹的幸福状况。

The well-being of siblings of individuals with autism.

作者信息

Green Laura

机构信息

College of Science, Engineering and Health, RMIT University, Melbourne, VIC 3083, Australia.

出版信息

ISRN Neurol. 2013 Apr 30;2013:417194. doi: 10.1155/2013/417194. Print 2013.

DOI:10.1155/2013/417194
PMID:23738144
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3657443/
Abstract

Objective. The purpose of this review of the literature was to summarise studies regarding the psychosocial impact of growing up with a sibling with autism and to identify gaps in the related literature. Methods. Electronic databases were reviewed in order to critically appraise the 14 articles relevant to the topic. The search included a combination of the following key words: autism∗, quality of life, well-being, sibling∗, ASD, ASD sibling∗, family, adjust∗, psychological functioning. Results. The majority of studies involved mixed children and adolescent samples, leading to confounding results and an inability to draw accurate conclusions about these distinct life stages. Autism appears to contribute to unique environmental stressors for the typically developing sibling. When experienced in the context of additional demographic risk factors, these stressors can result in difficulties adjusting to the demands of a special-needs child. Despite some vulnerability to behavioural and emotional dysfunction in at-risk children, siblings have the potential to not only adjust but to thrive in the face of disability adversity. Conclusion. Growing up with a sibling with autism appears to manifest in both positive and negative outcomes for siblings, depending upon important demographical, family, and individual variables.

摘要

目的。本综述文献的目的是总结关于与自闭症兄弟姐妹一起成长的心理社会影响的研究,并找出相关文献中的空白。方法。对电子数据库进行了检索,以便对14篇与该主题相关的文章进行批判性评价。检索词组合如下:自闭症*、生活质量、幸福感、兄弟姐妹*、自闭症谱系障碍、自闭症谱系障碍兄弟姐妹*、家庭、适应*、心理功能。结果。大多数研究涉及儿童和青少年的混合样本,导致结果混淆,无法就这些不同的生命阶段得出准确结论。自闭症似乎会给发育正常的兄弟姐妹带来独特的环境压力源。当在其他人口统计学风险因素的背景下经历这些压力源时,可能会导致难以适应特殊需求儿童的要求。尽管有风险的儿童在行为和情绪功能障碍方面存在一些易感性,但兄弟姐妹不仅有适应的潜力,而且有可能在面对残疾逆境时茁壮成长。结论。与自闭症兄弟姐妹一起成长似乎对兄弟姐妹既有积极影响也有消极影响,这取决于重要的人口统计学、家庭和个体变量。

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