Dua Anupreet, Jones Georgina, Wood Hilary, Sidhu Herjit
Derriford Hospital, Plymouth, PL6 8DH, UK,
Int Urogynecol J. 2013 Nov;24(11):1969-75. doi: 10.1007/s00192-013-2132-9. Epub 2013 Jun 13.
Questionnaires for assessing health and related quality of life are increasingly advocated but little is known about women's views on them. The aim of the study was to understand women's experiences of using an electronic personal assessment questionnaire for pelvic floor disorders (ePAQ-PF) during the clinical episode.
A qualitative study was performed in a tertiary referral centre for urogynaecology. Women who completed the electronic questionnaire (ePAQ-PF) before and after intervention for pelvic floor disorders were recruited. Semi-structured interviews were conducted in 20 women and the transcripts were analysed using a thematic approach to identify themes and categories. The main outcome measures were: (1) women's feelings about their experience of using the questionnaire and the impact it had on their clinical episode, (2) exploration of ways in which the questionnaire influenced communication, (3) influence of the questionnaire on anxiety and expectations relating to clinical care and (4) women's feelings about how the use of the questionnaire has affected their health and well-being.
Qualitative analysis identified eight themes relating to the burden and the benefit of questionnaire use with 'benefit' being the dominant theme. Women felt that the questionnaire improved their understanding of their condition, improved communication with clinicians and helped prepare them for clinical consultations, generally finding it relevant, easy and enjoyable to complete. Some women commented on the burden of questionnaire use and expressed concerns about its length and that it's closed multiple choice format was restrictive.
The identified principal themes of enhanced communication and preparedness for clinical consultation provided by the questionnaire appeared to support improved focus and insight, which in turn contributed to the setting of realistic expectations.
用于评估健康及相关生活质量的问卷越来越受到推崇,但对于女性对这些问卷的看法却知之甚少。本研究的目的是了解女性在临床过程中使用盆底功能障碍电子个人评估问卷(ePAQ-PF)的体验。
在一家三级泌尿妇科转诊中心进行了一项定性研究。招募了在盆底功能障碍干预前后完成电子问卷(ePAQ-PF)的女性。对20名女性进行了半结构化访谈,并使用主题分析法对访谈记录进行分析,以确定主题和类别。主要结局指标包括:(1)女性对使用问卷体验的感受及其对临床过程的影响;(2)探究问卷影响沟通的方式;(3)问卷对与临床护理相关的焦虑和期望的影响;(4)女性对使用问卷如何影响其健康和幸福感的感受。
定性分析确定了与问卷使用的负担和益处相关的八个主题,其中“益处”是主导主题。女性认为问卷提高了她们对自身病情的理解,改善了与临床医生的沟通,并帮助她们为临床会诊做好准备,总体上觉得问卷相关、易于完成且令人愉快。一些女性提到了问卷使用的负担,并对问卷长度以及封闭式多项选择格式的局限性表示担忧。
问卷所提供的增强沟通和为临床会诊做好准备这两个主要主题似乎有助于提高关注度和洞察力,进而有助于设定现实的期望。