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赋权与癌症患者:癌症医学中的政治学

Empowerment and persons with cancer: politics in cancer medicine.

作者信息

Gray R E, Doan B D, Church K

机构信息

Department of Psychology, Sunnybrook Health Science Centre, North York, Ontario, Canada.

出版信息

J Palliat Care. 1990 Summer;6(2):33-45.

PMID:2376805
Abstract

Persons with cancer are likely to encounter a loss of personal control as a result of their illness experience. An empowerment perspective, which emphasizes the possibility of patients "owning their own lives", is useful for understanding the interpersonal and social dynamics of patients' loss of control and for guiding the development of strategies aimed at maximizing control. Because the factors influencing an individual's sense of control are multi-leveled, optimal empowerment occurs when strategies are employed at several levels of social organization. In this paper, a number of barriers to the empowerment of cancer patients are identified and strategies recommended to enhance patient empowerment in cancer care. The empowerment needs and strategies discussed here include: (a) the provision of optimal care, (b) the enhancement of individual patient power, (c) the development of a strong consumer voice in policy decision-making processes, and (d) societal attitude change.

摘要

癌症患者由于患病经历,很可能会遭遇个人控制权的丧失。一种强调患者“掌控自己生活”可能性的赋权观点,有助于理解患者失去控制权的人际和社会动态,并指导旨在最大限度增强控制权的策略的制定。由于影响个人控制感的因素是多层次的,当在社会组织的多个层面采用策略时,才能实现最佳赋权。本文识别了一些癌症患者赋权的障碍,并推荐了在癌症护理中增强患者赋权的策略。这里讨论的赋权需求和策略包括:(a) 提供最佳护理;(b) 增强个体患者的权力;(c) 在政策决策过程中培养强大的消费者声音;(d) 改变社会态度。

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引用本文的文献

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Discussion of "Representation of People's Decisions in Health Information Systems: A Complementary Approach for Understanding Health Care Systems and Population Health".《健康信息系统中人们决策的呈现:理解医疗保健系统和人群健康的一种补充方法》的讨论
Methods Inf Med. 2017 Feb 1;56(S 01):e20-e29. doi: 10.3414/ME16-15-0001.
2
Empowerment needs of women with breast cancer: a qualitative study.乳腺癌女性的赋权需求:一项定性研究。
Iran Red Crescent Med J. 2014 Nov 15;16(11):e16379. doi: 10.5812/ircmj.16379. eCollection 2014 Nov.
3
"When patients have cancer, they stop seeing me"--the role of the general practitioner in early follow-up of patients with cancer--a qualitative study.
“癌症患者不再找我看病了”——全科医生在癌症患者早期随访中的作用——一项定性研究
BMC Fam Pract. 2006 Mar 21;7:19. doi: 10.1186/1471-2296-7-19.
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Development of a patient decision aid for choice of surgical treatment for breast cancer.一种用于乳腺癌手术治疗选择的患者决策辅助工具的开发。
Health Expect. 1998 Jun;1(1):23-36. doi: 10.1046/j.1369-6513.1998.00003.x.
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Physicians in health care management: 7. The patient-physician partnership: changing roles and the desire for information.医疗保健管理中的医生:7. 医患伙伴关系:角色转变与信息需求
CMAJ. 1994 Jul 15;151(2):171-6.
6
Advocacy groups for breast cancer patients.乳腺癌患者权益倡导组织。
CMAJ. 1995 Mar 15;152(6):829-33.