Waller M, Batt S
Department of Anthropology and Sociology, John Abbott College, Sainte-Anne-de-Bellevue, Que.
CMAJ. 1995 Mar 15;152(6):829-33.
Breast cancer patient advocacy groups emerged in the 1990s to support and empower women with breast cancer. Women with cancer and oncologists tend to have divergent perspectives on how breast cancer prevention should be defined and what the priorities for research should be. As their American counterparts have done, breast cancer patient advocates in Canada are seeking greater participation in decision making with respect to research. To date they have had more input into research policy decisions than into the planning of specific projects. In 1993 the National Forum on Breast Cancer recommended that women with breast cancer should have more input into the research process; breast cancer patient advocates will continue to actively pursue this objective.
乳腺癌患者权益倡导组织于20世纪90年代出现，旨在支持患乳腺癌的女性并赋予她们力量。癌症患者和肿瘤学家对于乳腺癌预防应如何定义以及研究重点应该是什么往往有不同的观点。和美国同行一样，加拿大的乳腺癌患者倡导者正在寻求更多地参与研究决策。迄今为止，他们在研究政策决策方面的投入比在具体项目规划方面的投入更多。1993年，全国乳腺癌论坛建议乳腺癌患者应更多地参与研究过程；乳腺癌患者倡导者将继续积极追求这一目标。
