Morley Lyndon, McAndrew Alison, Tse Karen, Rakaric Peter, Cummings Bernard, Cashell Angela
Radiation Medicine Program, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
J Cancer Educ. 2013 Sep;28(3):474-80. doi: 10.1007/s13187-013-0489-6.
The purpose of this study was to understand and compare patient and staff perceptions of a video-based preparatory education tool for head and neck radiotherapy. Patients and staff completed a questionnaire assessing their perceptions of whether the education tool was relevant, clear, complete and reassuring. Staff rated the video's accuracy and anticipated impact on future patient information needs. Demographic information was collected. Open-ended questions were used to elicit additional feedback. Quantitative responses from 50 patients and 48 staff were very positive and not significantly different between the two groups. Content analysis of the qualitative data provided insight into the information and approaches valued by patients and staff and how these differed. Staff members were more critical of the production quality and completeness of information related to procedures and treatment side effects. Patients valued seeing procedures acted out and desired more information about what these experiences would feel like and how to engage in self-care. Although staff-driven development may be an effective method of designing the content and approach of a preparatory education video, care should be taken to consider differences between patient and staff perceptions of information needs.
本研究的目的是了解并比较患者和工作人员对一种用于头颈放疗的视频预教育工具的看法。患者和工作人员完成了一份问卷，评估他们对该教育工具是否相关、清晰、完整以及是否令人安心的看法。工作人员对视频的准确性以及对未来患者信息需求的预期影响进行了评分。收集了人口统计学信息。使用开放式问题来获取更多反馈。50名患者和48名工作人员的定量回复非常积极，两组之间没有显著差异。对定性数据的内容分析揭示了患者和工作人员重视的信息和方法，以及它们之间的差异。工作人员对与程序和治疗副作用相关的信息的制作质量和完整性更为挑剔。患者重视看到实际演示的程序，并希望获得更多关于这些体验会是什么感觉以及如何进行自我护理的信息。尽管由工作人员主导的开发可能是设计预教育视频内容和方法的有效方式，但应注意考虑患者和工作人员对信息需求看法的差异。
