Sow Khoudia
Regional Center for Care and Training in Fann Hospital, Dakar, Senegal.
SAHARA J. 2013 Jul;10 Suppl 1:S28-36. doi: 10.1080/02664763.2012.755322.
In Senegal, where HIV prevalence is less than 1% and stigma remains important, 40% of marriages are polygamic. The purpose of this article is to describe and analyze the motivations, benefits and constraints related to HIV disclosure, and to explore specific situations related to polygamy. Data were collected through qualitative research based on in-depth repeated interviews on the experience of antiretroviral therapy and its social effects, conducted over a period of 10 years with people on antiretroviral treatment and their caregivers. Health professionals encourage people to disclose their HIV status, especially in certain circumstances such as preventing mother-to-child transmission of HIV. Nevertheless they are aware of the social risks for some patients, particularly women. Some health workers insist on disclosure, while others do not interfere with women who do not disclose to their partner, while highlighting their ethical dilemma. Interviews trace the changing attitudes of caregivers regarding disclosure. The majority of married women begin by sharing their HIV status with their mother, waiting for her to confirm that the contamination is not due to immoral behavior and to participate in implementing a strategy to maintain secrecy. In polygamous households, women try to disclose to their partner, keeping the secret beyond the couple. Some women fear disclosure by their husbands to co-spouses, whose attitudes can be very diverse: some stories relate collective rejection from the household; sometimes disclosure is made in a progressive way following the hierarchy of positions of each person in the household; another person reported the solidarity shown by her co-spouses who kept her HIV status a secret outside the household. The article shows the diversity of situations and their dynamics regarding both disclosure practices and their social effects.
在塞内加尔,艾滋病毒感染率低于1%,耻辱感仍然很严重,40%的婚姻是一夫多妻制。本文旨在描述和分析与艾滋病毒披露相关的动机、益处和限制,并探讨与一夫多妻制相关的具体情况。数据是通过定性研究收集的,该研究基于对接受抗逆转录病毒治疗的患者及其护理人员进行的为期10年的关于抗逆转录病毒治疗经历及其社会影响的深入反复访谈。卫生专业人员鼓励人们披露自己的艾滋病毒感染状况,特别是在某些情况下,如预防艾滋病毒母婴传播。然而,他们意识到一些患者,尤其是女性面临的社会风险。一些卫生工作者坚持要求披露,而另一些人则不干涉未向伴侣披露感染状况的女性,同时强调他们的伦理困境。访谈追踪了护理人员对披露态度的变化。大多数已婚女性首先会与母亲分享自己的艾滋病毒感染状况,等待母亲确认感染并非由于不道德行为,并参与制定保密策略。在一夫多妻制家庭中,女性试图向伴侣披露,同时对伴侣之外的人保密。一些女性担心丈夫会向其他配偶披露,而其他配偶的态度可能多种多样:有些故事讲述了被家庭集体排斥的情况;有时会按照家庭中每个人的地位等级逐步披露;另一个人报告说,她的其他配偶表现出团结,在家庭之外对她的艾滋病毒感染状况保密。本文展示了在披露行为及其社会影响方面情况的多样性及其动态变化。