Sung Mi Ra, Yi Myungsun, Lee Dong Young, Jang Hye Young
Department of Nursing, Kyung-in Women's University, Incheon, Seoul Metropolitan Center for Dementia, Seoul, Korea.
J Korean Acad Nurs. 2013 Jun;43(3):389-98. doi: 10.4040/jkan.2013.43.3.389.
The purpose of the study was to understand and describe the overcoming experiences of family members caring for elderly patients with dementia at home.
Data came from autobiographies on the overcoming experiences of caregiving from 31 participants, who had submitted the autobiographies to a public contest held by the Seoul Metropolitan Center for Dementia in 2012. Data were analyzed using qualitative content analysis.
Four overcoming stages emerged from the analysis: confronting stage; challenging stage; integrating stage; and transcendental stage, representing transformation of experiences from frustration and suffering to happiness and new hope in life. The confronting stage illustrates severe negative feelings and exhaustion occurring after the diagnosis of dementia. The challenging stage signifies major driving forces in taking good care of their patients. It includes tender loving memories about the patients as well as family and social supports. The integrating stage shows genuine empathy for the patients' situation and the happiness of 'here and now', while the transcendental stage represents new hope in the future.
Health professionals need to support caregivers to find true meaning of caring and happiness in everyday life, while providing specific information on dementia care and relieving various negative feelings.
本研究旨在了解和描述在家照顾老年痴呆患者的家庭成员的克服经历。
数据来自31名参与者关于照顾经历的自传，这些参与者于2012年将自传提交给首尔市痴呆症中心举办的公开竞赛。采用定性内容分析法对数据进行分析。
分析得出四个克服阶段：面对阶段；挑战阶段；整合阶段；和超越阶段，代表着经历从挫折和痛苦向生活中的幸福和新希望的转变。面对阶段体现了痴呆症诊断后出现的严重负面情绪和疲惫。挑战阶段意味着照顾患者的主要驱动力。它包括对患者的温馨回忆以及家庭和社会支持。整合阶段表现出对患者处境的真正同理心和“此时此地”的幸福，而超越阶段代表着对未来的新希望。
卫生专业人员需要支持照顾者在日常生活中找到照顾的真正意义和幸福，同时提供有关痴呆症护理的具体信息并缓解各种负面情绪。
