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患有乳糜泻的女性的日常生活。

Everyday life for women with celiac disease.

作者信息

Roos Susanne, Hellström Ingrid, Hallert Claes, Wilhelmsson Susan

机构信息

Department of Social and Welfare Studies, Linköping University, Norrköping, Sweden.

出版信息

Gastroenterol Nurs. 2013 Jul-Aug;36(4):266-73. doi: 10.1097/SGA.0b013e31829ed98d.

Abstract

The aim of this research was to explore how women with celiac disease experience everyday life. It is important that healthcare professionals understand what it is like to live with a chronic illness, and also the factors that affect the lives of women who have celiac disease. The study has a qualitative approach and the data were collected using interviews with 16 women. A conventional content analysis was used for the subjective interpretation of the qualitative interviews. Three main themes emerged in the analysis: illness trajectory and treatment, socializing with others, and feelings of loneliness and worry. The findings indicate that living with celiac disease affects the person's entire life from the past, in the present, and into the future, especially when daily routines must be altered. The women expressed a sense of loneliness and invisibility, especially when socializing with others. The diet could be a friend, enemy, obstacle, or opportunity in terms of enjoying a good life. Supporting women diagnosed with celiac disease appears to be a major task for healthcare professionals. Such professionals need to pay attention to women's symptoms, worries, and their feeling of being invisible.

摘要

本研究的目的是探索患有乳糜泻的女性如何体验日常生活。医疗保健专业人员了解慢性病患者的生活状况以及影响患有乳糜泻女性生活的因素非常重要。该研究采用定性研究方法,通过对16名女性进行访谈来收集数据。采用传统的内容分析法对定性访谈进行主观解读。分析中出现了三个主要主题:疾病轨迹与治疗、与他人交往以及孤独和担忧感。研究结果表明,患有乳糜泻会影响一个人从过去到现在再到未来的整个生活,尤其是当日常习惯必须改变时。这些女性表达了一种孤独感和不被关注感,尤其是在与他人交往时。就享受美好生活而言,饮食可能是朋友、敌人、障碍或机会。对医疗保健专业人员来说,支持被诊断患有乳糜泻的女性似乎是一项主要任务。这些专业人员需要关注女性的症状、担忧以及她们不被关注的感受。

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