Department of Social and Welfare Studies, Faculty of Health Sciences, Linköping University, Norrköping, Sweden.
J Clin Nurs. 2012 Dec;21(23-24):3442-50. doi: 10.1111/j.1365-2702.2012.04279.x. Epub 2012 Oct 8.
To describe what life is like as a woman living with coeliac disease.
The therapy for coeliac disease is a gluten-free diet, and if sufferers keep strictly to this, it is suggested that they will stay well. However, previous studies point out that people who are treated for coeliac disease, particularly women, experience various kinds of inconvenience in relation to having coeliac disease and to being treated with gluten-free diet.
A qualitative research design was chosen.
A phenomenological approach as devised by Giorgi was used. Tape-recorded qualitative interviews with a total of 15 women who were being treated for coeliac disease were conducted in 2008 in Sweden.
The results demonstrated that coeliac disease can influence women's lives in different ways. The general structure of being a woman with coeliac disease was described as a striving towards a normalised lifeworld. Three conditions necessary to achieve a normalised life were described, namely being secure, being in control and being seen and included.
Understanding factors affecting the ability to live with coeliac disease as normally as possible can help caregivers, and others, to support these women in their aims.
Nurses should help women to adopt facilitating thoughts in relation to the disease and, in so doing, help them to select appropriate coping strategies.
描述一位患有乳糜泻的女性的生活状况。
乳糜泻的治疗方法是无麸质饮食，如果患者严格遵守，他们的病情会得到改善。然而，先前的研究表明，患有乳糜泻的人，尤其是女性，在患有乳糜泻和接受无麸质饮食治疗方面会遇到各种不便。
选择了定性研究设计。
使用了乔治所设计的现象学方法。2008 年，在瑞典对 15 名接受乳糜泻治疗的女性进行了总计 15 次的录音定性访谈。
结果表明，乳糜泻会以不同的方式影响女性的生活。患有乳糜泻的女性的一般生活结构被描述为努力实现正常化的生活世界。描述了实现正常生活所需的三个条件，即安全、掌控和被看见并被接纳。
了解影响尽可能正常地生活乳糜泻的因素可以帮助护理人员和其他人支持这些女性实现目标。
护士应该帮助女性采用有利于疾病的思维方式，从而帮助她们选择适当的应对策略。
