Division of Pediatric Endocrinology and Diabetes, The Children's Hospital of Philadelphia, Philadelphia, Pa., USA.
Horm Res Paediatr. 2013;80(2):86-91. doi: 10.1159/000351463. Epub 2013 Aug 10.
Parents' knowledge influences decisions regarding medical care for their children.
Parents of pediatric primary care patients aged 9-14 years, irrespective of height, participated in open focus groups (OFGs). Moderators asked the question, 'How do people find out about growth hormone (GH)?' Because many parents cited the Internet, the top 10 results from the Google searches of 'growth hormone children' and 'parents of children who take growth hormone' were examined. Three investigators independently performed content analysis and then reached a consensus. The results were tabulated via summary statistics.
Eighteen websites were reviewed, most with the purpose of education (56%) and many funded by commercial sources (44%). GH treatment information varied, with 33% of the sites containing content only about US FDA-approved indications. Fifty-six percent of the sites included information about psychosocial benefits from treatment, with 44% acknowledging them as controversial. Although important to OFG participants, risks and costs were each omitted from 39% of the websites.
Parents often turn to the Internet for GH-related information for their children, although its content may be incomplete and/or biased. Clinicians may want to provide parents with tools for critically evaluating Internet-based information, a list of prereviewed websites, or their own educational materials.
父母的知识会影响他们为孩子做出的医疗决策。
我们招募了儿科初级保健患者（年龄 9-14 岁）的父母参与开放式焦点小组（OFG）。主持人提出问题：“人们如何了解生长激素（GH）？”由于许多父母提到了互联网，我们对“儿童生长激素”和“使用生长激素的儿童的父母”的谷歌搜索的前 10 个结果进行了检查。三位研究人员独立进行了内容分析，然后达成了共识。结果通过总结统计数据进行制表。
我们共审查了 18 个网站，其中大部分是教育性质的（56%），许多由商业来源资助（44%）。GH 治疗信息各不相同，仅有 33%的网站仅包含美国 FDA 批准的适应症信息。56%的网站包含关于治疗的心理社会益处的信息，其中 44%认为这些益处存在争议。尽管对 OFG 参与者很重要，但风险和成本在 39%的网站中被忽略了。
父母经常为孩子上网查询与 GH 相关的信息，但这些信息可能不完整且/或存在偏见。临床医生可能希望为父母提供工具，帮助他们批判性地评估基于互联网的信息，或者提供预先审查过的网站列表，或者提供自己的教育材料。
