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斑秃患者的生活质量:突尼斯患者样本

Quality of life in alopecia areata: a sample of tunisian patients.

作者信息

Masmoudi Jawaher, Sellami Rim, Ouali Uta, Mnif Leila, Feki Ines, Amouri Mariam, Turki Hamida, Jaoua Abdellaziz

机构信息

Department of Psychiatry A, Hédi Chaker University Hospital, Sfax, Tunisia.

出版信息

Dermatol Res Pract. 2013;2013:983804. doi: 10.1155/2013/983804. Epub 2013 Jul 18.

DOI:10.1155/2013/983804
PMID:23970896
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3732641/
Abstract

Background. Alopecia areata (AA) has a significant impact on the quality of life and social interaction of those suffering from it. Our aim was to assess the impact of AA on the quality of life. Methods. Fifty patients diagnosed with AA seen in the Department of Dermatology of Hedi Chaker University Hospital, between March 2010 and July 2010, were included. Quality of life was measured by SF 36; severity of AA was measured by SALT. Results. Eighty percent had patchy alopecia with less than 50% involvement, 12% had patchy alopecia with 50-99% involvement, and 8% had alopecia totalis. Compared with the general population, AA patients presented a significantly altered quality of life, found in the global score and in five subscores of the SF-36: mental health, role emotional, social functioning, vitality, and general health. Gender, age, marital status, and severity of alopecia areata had a significant influence on patients' quality of life. Conclusions. This study indicates that patients with AA experience a poor quality of life, which impacts their overall health. We suggest screening for psychiatric distress. Studies of interventions such as counseling, psychoeducation, and psychotherapeutic interventions to reduce the impact of the disease may be warranted.

摘要

背景。斑秃(AA)对患者的生活质量和社交互动有重大影响。我们的目的是评估斑秃对生活质量的影响。方法。纳入2010年3月至2010年7月在赫迪·查克大学医院皮肤科就诊的50例诊断为斑秃的患者。生活质量采用SF-36量表测量;斑秃严重程度采用SALT测量。结果。80%的患者为局限性斑秃,受累面积小于50%,12%的患者为局限性斑秃,受累面积为50%-99%,8%的患者为全秃。与一般人群相比,斑秃患者的生活质量在SF-36的总体评分以及五个子评分中均有显著改变:心理健康、角色情感、社会功能、活力和总体健康。性别、年龄、婚姻状况和斑秃严重程度对患者的生活质量有显著影响。结论。本研究表明,斑秃患者生活质量较差,这会影响他们的整体健康。我们建议对精神困扰进行筛查。可能有必要开展如咨询、心理教育和心理治疗干预等研究,以减少该疾病的影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/31fd/3732641/932a2b0d590d/DRP2013-983804.001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/31fd/3732641/932a2b0d590d/DRP2013-983804.001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/31fd/3732641/932a2b0d590d/DRP2013-983804.001.jpg

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本文引用的文献

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Indian J Dermatol Venereol Leprol. 2011 Jul-Aug;77(4):489-93. doi: 10.4103/0378-6323.82411.
2
Clinical severity does not reliably predict quality of life in women with alopecia areata, telogen effluvium, or androgenic alopecia.临床严重程度不能可靠地预测女性斑秃、休止期脱发或雄激素性脱发患者的生活质量。
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Quality of life in alopecia areata: a study of 60 cases.
阿联酋斑秃疾病流行病学、合并症、治疗模式和医疗资源利用的回顾性分析:基于索赔数据库。
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Psychometric Properties of the EQ-5D-5L in Patients with Alopecia Areata.斑秃患者中EQ-5D-5L量表的心理测量学特性
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Disease burden, clinical management and unmet treatment need of patients with moderate to severe alopecia areata; consensus statements, insights, and practices from CERTAAE (Central/Eastern EU, Russia, Türkiye AA experts) Delphi panel.中度至重度斑秃患者的疾病负担、临床管理及未满足的治疗需求;CERTAAE(中欧/东欧、俄罗斯、土耳其斑秃专家)德尔菲小组的共识声明、见解及实践
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Estimation of health utility values for alopecia areata.估算斑秃的健康效用值。
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The Burden of Disease in Alopecia Areata: Canadian Online Survey of Patients and Caregivers.斑秃的疾病负担:加拿大患者及护理人员在线调查
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