Carpenter P J, Sahler O J, Davis M S
University of Rochester Cancer Center, NY 14642.
J Cancer Educ. 1990;5(1):21-6. doi: 10.1080/08858199009528030.
It has been reported that siblings of children with cancer often lack information and understanding about their brother's or sister's disease and treatment. The purpose of this paper is twofold: (1) to describe a camping program for siblings, which was designed, in part, to provide these children with age-appropriate medical information; and (2) to report the results of a study which examined how this intervention influenced siblings' knowledge and understanding of their brother's or sister's disease. Ninety siblings between the ages of 6 and 17 who completed a pre/post camp medical information questionnaire participated in this investigation. The results revealed that younger (6- to 11-year-old) siblings attending camp for at least the second time and older (12- to 17-year-old) siblings attending camp for the first time experienced significant (p less than .05) improvement in their overall knowledge and understanding of their brother's or sister's cancer. The results also revealed positive changes in the desired direction with respect to siblings' fear or their friends' fear about catching their brother's or sister's cancer. The results of this study provide a conceptual model for other pediatric cancer facilities engaged in developing intervention programs for siblings.
据报道，患癌儿童的兄弟姐妹往往对其兄弟或姐妹的疾病及治疗缺乏了解。本文的目的有两个：（1）描述一个针对兄弟姐妹的露营项目，该项目部分旨在为这些孩子提供适合其年龄的医学信息；（2）报告一项研究的结果，该研究考察了这种干预如何影响兄弟姐妹对其兄弟或姐妹疾病的认知和理解。90名年龄在6至17岁之间且完成了露营前后医学信息问卷的兄弟姐妹参与了这项调查。结果显示，至少第二次参加露营的年幼（6至11岁）兄弟姐妹以及首次参加露营的年长（12至17岁）兄弟姐妹在对其兄弟或姐妹癌症的总体认知和理解方面有显著（p小于0.05）改善。结果还显示，在兄弟姐妹对自身或其朋友患兄弟或姐妹所患癌症的恐惧方面也朝着预期方向出现了积极变化。这项研究的结果为其他从事为兄弟姐妹制定干预项目的儿科癌症机构提供了一个概念模型。
