Cho Min Hyun
Department of Pediatrics, Kyungpook National University Medical Center, Daegu, Korea.
Korean J Pediatr. 2013 Aug;56(8):323-6. doi: 10.3345/kjp.2013.56.8.323. Epub 2013 Aug 27.
Quality of life in addition to various medical problems in children with end-stage renal disease (ESRD) should be objectively assessed to accomplish normal growth and development during childhood. However, unfortunately, studies of quality of life (QoL) in children with ESRD have been not popular yet and there are only fewer suitable assessment tools compared with adults. Recently, disease-specific modules to evaluate QoL in children with chronic disease such as ESRD have been developed. This review was made to introduce these QoL instruments for children and help the clinical application of them.
除了患有终末期肾病(ESRD)儿童的各种医学问题外,还应客观评估其生活质量,以实现儿童期的正常生长发育。然而,遗憾的是,关于ESRD儿童生活质量(QoL)的研究尚不普遍,与成人相比,合适的评估工具也较少。最近,已经开发出针对特定疾病的模块来评估患有慢性疾病(如ESRD)儿童的QoL。本综述旨在介绍这些儿童QoL评估工具,并帮助其在临床中的应用。