Department of Basic Psychological Research and Research Methods, Faculty of Psychology, University of Vienna, Liebiggasse 5, A-1010 Vienna, Austria.
Res Dev Disabil. 2013 Nov;34(11):3962-77. doi: 10.1016/j.ridd.2013.08.013. Epub 2013 Sep 8.
This work describes an extensive systematic literature review on assessment instruments for dementia in persons with intellectual disability (ID). Existing instruments for the detection of dementia in persons with ID were collected and described systematically. This allows a direct and quick overview of available tools. Additionally, it contributes to the availability and usability of information about these instruments, thus enhancing further developments in this field.
A systematic literature search in five databases (CINAHL, PsycInfo, PubMed, Scopus, and Web of Science) was conducted. In order to include gray literature an invisible college approach was used. Relevant studies were identified and selected using defined inclusion and exclusion criteria. After the selection process all instruments were coded and classified. It was determined which concepts they assess, whether they were especially developed or adapted for persons with ID, and whether they were designed to assess dementia. The selection of relevant papers, as well as the coding of instruments was done independently by two researchers.
In total, 97 records met the search criteria. Out of these, 114 different instruments were extracted. There were 79 instruments to be completed by the person with ID, and 35 informant-based instruments. Additionally, four test batteries were found. Some of these instruments were neither designed for the assessment of dementia, nor for persons with ID.
There are a variety of different tools used for the assessment of dementia in ID. Nevertheless, an agreed-upon approach or instrument is missing. Establishing this would improve the quality of assessment in clinical practice, and benefit research. Data collected would become comparable and combinable, and allow research to have more informative value.
本研究对智力障碍（ID）人群痴呆评估工具进行了广泛的系统文献回顾。系统收集和描述了现有的 ID 人群痴呆检测工具，以便能够直接快速地了解现有工具。此外，这也有助于提供和使用这些工具的信息，从而促进该领域的进一步发展。
在五个数据库（CINAHL、PsycInfo、PubMed、Scopus 和 Web of Science）中进行了系统文献检索。为了纳入灰色文献，采用了无形学院方法。使用定义的纳入和排除标准确定相关研究并进行选择。在选择过程之后，对所有工具进行编码和分类。确定它们评估哪些概念，它们是否专门为 ID 人群开发或改编，以及它们是否旨在评估痴呆。相关论文的选择以及工具的编码均由两名研究人员独立完成。
共有 97 条记录符合搜索标准。其中，共提取了 114 种不同的工具。有 79 种工具由 ID 人群完成，35 种工具基于知情者报告。此外，还发现了四个测试套。其中一些工具既不是为评估痴呆设计的，也不是为 ID 人群设计的。
有多种不同的工具用于评估 ID 人群的痴呆。然而，目前缺乏一种公认的方法或工具。建立这种方法将提高临床实践评估的质量，并使研究受益。收集的数据将变得具有可比性和可组合性，并使研究具有更高的信息价值。
