Paiva Andreia F, Nolan Adam, Thumser Charlotte, Santos Flávia H
Communication and Society Research Centre, University of Minho, 4710-057 Braga, Portugal.
Centre for Disability Studies, University College Dublin Belfield, Dublin 4, Ireland.
Brain Sci. 2020 Nov 12;10(11):848. doi: 10.3390/brainsci10110848.
Screening and assessment of cognitive changes in adults with Intellectual Disabilities (ID), mainly Down Syndrome (DS), is crucial to offer appropriate services to their needs. We present a systematic review of the existing instruments assessing dementia, aiming to support researchers and clinicians' best practice.
Searches were carried out in the databases Web of Science; PubMed; PsycINFO in March 2019 and updated in October 2020. Studies were selected and examined if they: (1) focused on assessing age-related cognitive changes in persons with ID; (2) included adults and/or older adults; (3) included scales and batteries for cognitive assessment.
Forty-eight cross-sectional studies and twenty-seven longitudinal studies were selected representing a total sample of 6451 participants (4650 DS and 1801 with other ID). In those studies, we found 39 scales, questionnaires, and inventories, and 13 batteries for assessing cognitive and behavioural changes in adults with DS and other ID.
The most used instrument completed by an informant or carer was the Dementia Questionnaire for Learning Disabilities (DLD), and its previous versions. We discuss the strengths and limitations of the instruments and outline recommendations for future use.
对主要患有唐氏综合征（DS）的成年智力障碍（ID）患者的认知变化进行筛查和评估，对于根据其需求提供适当服务至关重要。我们对现有的痴呆评估工具进行了系统综述，旨在为研究人员和临床医生的最佳实践提供支持。
于2019年3月在科学网、PubMed、PsycINFO数据库中进行检索，并于2020年10月更新。对研究进行筛选和审查，条件为：（1）关注ID患者与年龄相关的认知变化评估；（2）纳入成年人和/或老年人；（3）包括用于认知评估的量表和成套测验。
选取了48项横断面研究和27项纵向研究，总样本量为6451名参与者（4650名DS患者和1801名其他ID患者）。在这些研究中，我们发现了39种用于评估DS和其他ID成年患者认知和行为变化的量表、问卷和量表清单，以及13种成套测验。
由照料者完成的最常用工具是《学习障碍痴呆问卷》（DLD）及其早期版本。我们讨论了这些工具的优点和局限性，并概述了未来使用的建议。
