Obeidat Rana F, Lally Robin M
Faculty of Nursing, Zarqa University, 257D Khawarezmi Building, Zarqa, Jordan,
J Cancer Educ. 2014 Sep;29(3):548-54. doi: 10.1007/s13187-013-0574-x.
The aim of this study was to explore Jordanian women's experiences of information exchange following diagnosis of early stage breast cancer. A purposive sample of 28 women who had surgery for early stage breast cancer within 6 months prior to the interview and had treatment at three hospitals in Central and Northern Jordan was recruited for the study. Data were collected using semi-structured individual interviews focused on women's communication experiences at diagnosis and during cancer treatment. Interviews were audio taped, transcribed verbatim in Arabic, and analyzed using conventional content analysis. Three main themes associated with information exchange were revealed as follows: (1) knowledge about breast cancer and its treatment, (2) communication of cancer diagnosis and treatment, and (3) educating on treatment side effects. Misconceptions about breast cancer risk factors, consequences of breast cancer treatment, and breast cancer-related symptoms were common among participants. Women made important health-related decisions based on misconceptions. Physician's information giving, availability, and responses to women's questions varied by their level of education and the type and location of treatment facility. Informational exchange experiences vary among Jordanian women diagnosed with breast cancer and raise concern over opportunities offered these women to engage in informed decision making. Findings suggest a need for nurses to assess the information needs of Jordanian women newly diagnosed with breast cancer and provide education tailored to individual needs. There is also a need to develop Arabic educational materials and make these available for patients at treatment facilities in all regions of Jordan.
本研究的目的是探讨约旦女性在被诊断为早期乳腺癌后的信息交流经历。研究招募了28名有目的的样本女性，她们在访谈前6个月内接受了早期乳腺癌手术，并在约旦中部和北部的三家医院接受治疗。通过半结构化的个人访谈收集数据，访谈聚焦于女性在癌症诊断和治疗期间的交流经历。访谈进行了录音，逐字转录成阿拉伯语，并采用传统内容分析法进行分析。与信息交流相关的三个主要主题如下：（1）关于乳腺癌及其治疗的知识；（2）癌症诊断和治疗的沟通；（3）治疗副作用的教育。参与者中对乳腺癌风险因素、乳腺癌治疗后果以及乳腺癌相关症状存在误解的情况很常见。女性基于这些误解做出了重要的健康相关决策。医生提供信息的方式、可获得性以及对女性问题的回应因她们的教育程度以及治疗机构的类型和地点而异。被诊断患有乳腺癌的约旦女性的信息交流经历各不相同，这引发了对为这些女性提供参与明智决策机会的担忧。研究结果表明，护士需要评估新诊断出乳腺癌的约旦女性的信息需求，并提供符合个人需求的教育。还需要开发阿拉伯语教育材料，并在约旦所有地区的治疗机构为患者提供这些材料。
