Smith Christina H, Jebson Emma M, Hanson Ben
Psychology and Language Sciences, University College London, London WC1N 1PF, UK.
Adult Speech and Language Therapy, Northwick Park Hospital, Watford Road, Middlesex HA1 3UJ, UK.
Clin Nutr. 2014 Feb;33(1):171-4. doi: 10.1016/j.clnu.2013.10.012. Epub 2013 Oct 21.
BACKGROUND & AIMS: Fluid thickeners are an important and commonly-used strategy to manage swallowing difficulties however there are no reports of the perceptions and experiences of parents of children using thickeners.
Semi-structured interviews of 14 parents having a child using fluid thickeners due to swallowing difficulties.
Parents reported improvements in quality of life and health through the use of thickeners. They also reported persistent difficulties in the use of thickeners.
Results showed unanimous goodwill and positive attitudes towards thickeners and their observed benefits, tempered by common difficulties with thickeners (variability and unpredictability). There remains scope for improvements of commercial thickeners and in information conveyed to users.
增稠剂是管理吞咽困难的一种重要且常用的策略,然而目前尚无关于使用增稠剂的儿童家长的看法和体验的报道。
对14位因孩子吞咽困难而使用液体增稠剂的家长进行半结构化访谈。
家长们报告称,使用增稠剂后生活质量和健康状况有所改善。他们还表示在使用增稠剂方面仍存在持续的困难。
结果显示,家长们对增稠剂及其所带来的明显益处普遍持有善意和积极态度,但同时也受到增稠剂常见问题(变异性和不可预测性)的影响。商业增稠剂以及向用户传达的信息仍有改进空间。