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婴幼儿心脏手术:母亲们讲述她们的故事:一段治疗经历。

Infant cardiac surgery: mothers tell their story: a therapeutic experience.

作者信息

Re Jennifer, Dean Suzanne, Menahem Samuel

机构信息

Department of Psychological Medicine, School of Psychology and Psychiatry, Monash University, Melbourne, Victoria, Australia.

出版信息

World J Pediatr Congenit Heart Surg. 2013 Jul;4(3):278-85. doi: 10.1177/2150135113481480.

DOI:10.1177/2150135113481480
PMID:24327496
Abstract

BACKGROUND

Serious congenital heart disease frequently requires major congenital heart surgery. It causes much distress for parents, which may not always be recognized and treated appropriately.

PATIENTS AND METHODS

As part of a larger study, 26 mothers of two-month-old infants subjected to recent cardiac surgery were interviewed in depth. Each mother was invited to describe her own and what she perceived were her infant's experiences and to comment on the interview process. A systematic content analysis of the interviews was performed using qualitative research methodology.

RESULTS

Almost all participants described acute stress symptoms relating to the diagnosis and the infant's surgery. In addition, most mothers reported that the interview helped them to think about and integrate what had happened to them and their infant, suggesting a probable therapeutic value to the interview.

CONCLUSIONS

A suitably qualified and experienced mental health professional, assisting the mother to tell her story about the diagnosis and her infant's cardiac surgery, may provide a valuable, brief, and very cost-effective therapeutic intervention for these mothers and infants. It has the potential to alleviate maternal distress, with associated gains for the developing mother-infant relationship, reducing infant morbidity, and enhancing the quality of life for both infant and mother.

摘要

背景

严重先天性心脏病常常需要进行重大先天性心脏手术。这给家长带来诸多困扰,而这些困扰可能并不总是能得到充分认识和恰当处理。

患者与方法

作为一项更大规模研究的一部分,对26位其两个月大婴儿近期接受心脏手术的母亲进行了深入访谈。每位母亲受邀描述自己以及她所认为的婴儿的经历,并对访谈过程发表评论。采用定性研究方法对访谈进行了系统的内容分析。

结果

几乎所有参与者都描述了与诊断及婴儿手术相关的急性应激症状。此外,大多数母亲表示访谈帮助她们思考并整合了自己和婴儿所经历的事情,这表明访谈可能具有治疗价值。

结论

一位具备适当资质和经验的心理健康专业人员,协助母亲讲述她关于诊断及婴儿心脏手术的经历,可能为这些母婴提供一种有价值、简短且极具成本效益的治疗干预。它有减轻母亲困扰的潜力,对发展母婴关系有相关益处,可降低婴儿发病率,并提高婴儿和母亲的生活质量。

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