The Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Support Care Cancer. 2014 May;22(5):1287-94. doi: 10.1007/s00520-013-2083-1. Epub 2013 Dec 17.
Family-based interventions in pediatric cancer face challenges associated with integrating psychosocial care into a period of intensive treatment and escalating stress. Little research has sought input from parents on the role of interventions delivered shortly after diagnosis. This mixed-methods study obtained parents' perspectives on the potential role of family-based interventions. Twenty-five parents provided feedback on the structure and timing of psychosocial interventions via focus groups and a questionnaire. Qualitative analyses resulted in three themes that were illustrative of a traumatic stress framework: (1) tension between focusing on child with cancer and addressing other family needs, (2) factors influencing parents' perception of a shared experience with other parents, and (3) the importance of matching interventions to the trajectory of parent adjustment. Quantitative data indicated that parents preferred intervention within 6 months of diagnosis, with almost half favoring within 2 months of diagnosis, and the majority wanted interventions targeted to parents only. Qualitative themes highlight the importance of using a traumatic stress framework to inform the development of family-based interventions for those affected by pediatric cancer.
基于家庭的儿童癌症干预措施面临着将心理社会护理融入强化治疗和不断增加的压力时期的挑战。很少有研究从父母的角度出发,探讨在诊断后不久提供干预措施的作用。这项混合方法研究获得了父母对基于家庭的干预措施潜在作用的看法。25 名父母通过焦点小组和问卷调查提供了对心理社会干预措施的结构和时间安排的反馈。定性分析产生了三个主题,这些主题说明了创伤性应激框架:(1)关注癌症患儿和满足其他家庭需求之间的紧张关系,(2)影响父母对与其他父母共同经历的看法的因素,以及(3)将干预措施与父母调整轨迹相匹配的重要性。定量数据表明,父母希望在诊断后 6 个月内接受干预,近一半的父母希望在诊断后 2 个月内接受干预,大多数父母希望只针对父母的干预措施。定性主题强调了使用创伤性应激框架为受儿童癌症影响的人制定基于家庭的干预措施的重要性。