Quinn Catherine, Clare Linda, Woods Robert T
School of Psychology, Bangor University, Bangor, UK
School of Psychology, Bangor University, Bangor, UK.
Dementia (London). 2015 Mar;14(2):220-37. doi: 10.1177/1471301213495863. Epub 2013 Jul 19.
This paper investigates how meaning, motivation and relationship dynamics influence the caregivers' subjective experience of caregiving. We interviewed 12 family caregivers of relatives with dementia. We analysed transcripts of these interviews using interpretative phenomenological analysis. Six key themes emerged from the analysis, which were encompassed under an overarching theme of 'balancing needs'. This describes the caregivers' constant struggle to balance their own needs against those of their relative, which created a series of dilemmas. These dilemmas emerged from the desire to try to preserve the caregivers' relationship with their relative, while recognising that this relationship was changing. The caregivers' relationship with their relative influenced the caregivers' motivations to provide care and gave caregiving meaning. Although caregivers were motivated to provide care the battle to balance needs meant that the caregivers recognised there might come a time when they may need to cease caregiving.
本文探讨了意义、动机和关系动态如何影响照顾者的照顾主观体验。我们采访了12位患有痴呆症亲属的家庭照顾者。我们使用解释现象学分析方法对这些访谈的文字记录进行了分析。分析中出现了六个关键主题，这些主题被纳入“平衡需求”这一总体主题之下。这描述了照顾者不断努力在自身需求与亲属需求之间取得平衡的过程，这引发了一系列困境。这些困境源于既要努力维护照顾者与亲属的关系，又要认识到这种关系正在发生变化。照顾者与亲属的关系影响了照顾者提供照顾的动机，并赋予了照顾行为意义。尽管照顾者有提供照顾的动机，但平衡需求的斗争意味着照顾者意识到可能会有需要停止照顾的时候。
