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通过阅读和写作训练雷特综合征患者的沟通能力。

Training communication abilities in Rett Syndrome through reading and writing.

机构信息

Department of Cognitive Science and Education, University of Messina Messina, Italy.

Research Unit on Theory of Mind, Department of Psychology, Catholic University of the Sacred Heart Milan, Italy.

出版信息

Front Psychol. 2013 Dec 6;4:911. doi: 10.3389/fpsyg.2013.00911. eCollection 2013.

Abstract

The goal of this clinical case study is to investigate the possibility of training communication abilities in people with Rett Syndrome (RS). Usually, girls with RS never exceed the sensorimotor stage of development, but the inter-individual variability typical of RS may lead us to doubt the irrevocability of that developmental limit, especially for those girls who are engaged in cognitive rehabilitation. The case study reported here concerns a 21-year-old girl with RS who was engaged in cognitive rehabilitation training based upon the principles of Feuerstein's modificability and mediated learning theory. The training aimed to teach her basic concepts and enhance reading-writing abilities. Statistical analyses showed that the girl reached adequate reading-writing abilities, proving the validity of the cognitive intervention which allowed her to communicate by composing words with her forefinger on an alphabetic table. Although these results need to be cautiously considered as they derive from a single case study, they have implications for future cognitive rehabilitation for deeply impaired clinical conditions as in the case of RS.

摘要

本临床案例研究旨在探讨对雷特综合征(RS)患者进行沟通能力训练的可能性。通常,患有 RS 的女孩的发育水平从未超过感觉运动阶段,但 RS 患者的个体间差异较大,这可能使我们怀疑这种发育限制的不可逆转性,尤其是对于那些接受认知康复的女孩。本案例研究报告了一名 21 岁的 RS 女孩,她接受了基于 Feuerstein 的可变性和中介学习理论的认知康复训练。该训练旨在教授她基本概念并提高读写能力。统计分析表明,该女孩达到了足够的读写能力,证明了认知干预的有效性,这种干预使她能够通过用食指在字母表上拼出单词来进行交流。尽管这些结果需要谨慎考虑,因为它们来自于单个案例研究,但它们对未来的认知康复具有启示意义,尤其是对 RS 等严重受损的临床情况。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/18d1/3854542/ff3705e64d1e/fpsyg-04-00911-g0001.jpg

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