Department of Social Work and Social Policy, LaTrobe University, Bundoora, Vic., Australia.
J Appl Res Intellect Disabil. 2014 Jan;27(1):54-64. doi: 10.1111/jar.12082. Epub 2013 Dec 4.
Funding bodies in Australia and the United Kingdom require research on issues that affect the lives of people with intellectual disability to be inclusive. Debate continues about the nature and benefits of inclusive research, which has become an umbrella term encompassing a broad spectrum of approaches.
This study proposes one method of inclusive research, the 'collaborative group' approach. It examines the processes used to conduct a study involving academics and self-advocates, presenting findings derived from an inductive analysis of field note data, interview and meeting transcripts.
Five components are identified: shared and distinct purposes of participants equally valued, shared involvement and distinct contributions equally valued, flexible, adapted research methods, working as a group with trusting relationships and dispersed power, and scaffolding for inclusion.
This collaborative group method potentially results in better research than either academics or self-advocates could achieve alone and has multiple knowledge outcomes with differing accessibility and complexity.
When people with an intellectual disability and researchers from universities or other organisations do research together it is called inclusive research. People have worked together on research for a long time but there are still some questions about why we should do it and the best way to do it.
This paper talks about one way of doing inclusive research that the people who wrote the paper call 'collaborative group approach'. They did a big project with a group of people with an intellectual disability and talked and thought a lot about what they were doing. What they found out. There are five parts to working this way; (i) Having some of the same and some different reasons for doing the research (ii) Doing some things together and doing some things apart (iii) Being able to change things as you go so people can do what they want to do and are good at. (iv) Knowing each other well and being able to work together equally. (v) Thinking about the way you work all the time to make sure people are doing what they are good at and what they want to do.
If people work this way it might lead to better research and understanding about the lives of people with an intellectual disability.
澳大利亚和英国的资助机构要求研究那些影响智障人士生活的问题时要具有包容性。关于包容性研究的性质和益处的争论仍在继续，包容性研究已成为一个涵盖广泛方法的总称。
本研究提出了一种包容性研究方法，即“协作小组”方法。它考察了涉及学者和自我倡导者的研究过程，展示了从对现场记录数据、访谈和会议记录的归纳分析中得出的研究结果。
确定了五个组成部分：参与者共同且独特的目的同等重视，共同参与和独特贡献同等重视，灵活、适应的研究方法，以信任关系和分散权力的方式作为一个团队合作，以及包容性的支持。
这种协作小组方法可能会产生比学者或自我倡导者单独完成的研究更好的结果，并且具有多种不同可及性和复杂性的知识成果。
当智障人士和来自大学或其他组织的研究人员一起进行研究时，这种研究称为包容性研究。人们已经一起进行研究很长时间了，但对于为什么要这样做以及最好的方法是什么，仍然存在一些问题。
本文讨论了一种包容性研究方法，即本文作者称之为“协作小组方法”。他们与一群智障人士一起进行了一个大型项目，并对他们所做的事情进行了大量的讨论和思考。他们发现，这种方法有五个部分：（i）对研究有一些相同和不同的原因；（ii）共同做一些事情，分开做一些事情；（iii）能够根据需要进行调整，以便人们能够做他们想做的事情和擅长的事情；（iv）彼此了解并能够平等合作；（v）不断思考工作方式，确保人们能够做他们擅长和想做的事情。
如果人们以这种方式工作，可能会导致更好的研究和对智障人士生活的理解。
