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通过家庭远程健康监测对多发性硬化症进行临床管理:一个试点项目的结果

Clinical management of multiple sclerosis through home telehealth monitoring: results of a pilot project.

作者信息

Turner Aaron P, Wallin Mitchell T, Sloan Alicia, Maloni Heidi, Kane Robert, Martz Lore, Haselkorn Jodie K

机构信息

VA Puget Sound Health Care System, Seattle, WA, USA (APT, AS, LM, JKH); Washington DC VA Medical Center, Washington, DC, USA (MTW, HM); VA MS Center of Excellence West, Seattle, WA, USA (APT, AS, JKH); VA MS Center of Excellence East, Washington, DC, USA (MTW, HM, RK); VA Center of Excellence in Substance Abuse Treatment and Education, Seattle, WA, USA (APT); Department of Rehabilitation Medicine (APT, JKH) and Department of Epidemiology, University of Washington, Seattle, WA, USA (JKH); Department of Neurology, Georgetown University, Washington, DC, USA (MTW).

出版信息

Int J MS Care. 2013 Spring;15(1):8-14. doi: 10.7224/1537-2073.2012-012.

Abstract

This study examined the feasibility of using home telehealth monitoring to improve clinical care and promote symptom self-management among veterans with multiple sclerosis (MS). This was a longitudinal cohort study linking mailed survey data at baseline and 6-month follow-up with information from home telehealth monitors. The study was conducted in two large Department of Veterans Affairs (VA) MS clinics in Seattle, Washington, and Washington, DC, and involved 41 veterans with MS. The measures were demographic information and data from a standardized question set using a home telehealth monitor. Participants reported moderate levels of disability (median Expanded Disability Status Scale [EDSS] score, 6.5) and substantial distance from the nearest VA MS clinic (mean distance, 93.6 miles). Of the participants, 61.0% reported current use of MS disease-modifying treatments. A total of 85.4% of participants provided consistent data from home monitoring. Overall satisfaction with home telehealth monitoring was high, with 87.5% of participants rating their experience as good or better. The most frequently reported symptoms at month 1 were fatigue (95.1%), depression (78.0%), and pain (70.7%). All symptoms were reported less frequently by month 6, with the greatest reduction in depression (change of 23.2 percentage points), although these changes were not statistically significant. Home telehealth monitoring is a promising tool for the management of chronic disease, although substantial practical barriers to efficient implementation remain.

摘要

本研究探讨了使用家庭远程医疗监测来改善临床护理并促进多发性硬化症(MS)退伍军人症状自我管理的可行性。这是一项纵向队列研究,将基线和6个月随访时的邮寄调查数据与家庭远程医疗监测器的信息相联系。该研究在华盛顿州西雅图市和华盛顿特区的两个大型退伍军人事务部(VA)MS诊所进行,涉及41名患有MS的退伍军人。测量指标为人口统计学信息以及使用家庭远程医疗监测器从标准化问题集中获取的数据。参与者报告的残疾程度为中度(扩展残疾状态量表[EDSS]中位数得分,6.5),且距离最近的VA MS诊所较远(平均距离,93.6英里)。在参与者中,61.0%报告目前正在使用MS疾病修正治疗。共有85.4%的参与者提供了来自家庭监测的一致数据。对家庭远程医疗监测的总体满意度较高,87.5%的参与者将他们的体验评为良好或更好。第1个月最常报告的症状是疲劳(95.1%)、抑郁(78.0%)和疼痛(70.7%)。到第6个月时,所有症状的报告频率均降低,抑郁症状下降幅度最大(变化23.2个百分点),尽管这些变化无统计学意义。家庭远程医疗监测是管理慢性病的一个有前景的工具,尽管高效实施仍存在重大实际障碍。

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