Ledderer Loni, la Cour Karen, Hansen Helle Ploug
Institute of Public Health, Aarhus University, Bartholins Allé 2, 8000, Aarhus, Denmark,
Patient. 2014;7(2):219-29. doi: 10.1007/s40271-014-0047-2.
In psychosocial cancer rehabilitation, relatives are often central to patients' experiences and management of their cancer disease, and they need to be actively involved in rehabilitation. To address this need we developed a psychosocial rehabilitation intervention. As part of the intervention, lung or gynecological cancer patients and a relative as a pair were offered three supportive talks initiated on the date of admission and completed within 2 months.
The objective of this study was to qualitatively assess the outcome of supportive talks from the pairs' perspectives and to provide a nuanced understanding of psychosocial support offered to pairs in a hospital setting in Denmark.
Using a qualitative approach, we conducted semi-structured interviews with pairs receiving supportive talks and pairs receiving usual care. The interviews focused on the pairs' experiences of psychosocial supportive talks in a hospital setting. A constant comparative analysis was applied to identify themes related to the ways the pairs experienced the talks.
The analysis revealed two main themes: 'appreciation of the supportive talks' and 'the influence of the hospital setting'. The majority of pairs valued the focus on relationship and interpersonal communication, although they appreciated various aspects of the talks. The hospital setting provided valuable resources (trained nurses and medical expertise), but existing clinical routines challenged the implementation of the supportive talks.
The supportive talks were appreciated as psychosocial support in line with the objective, or as information on cancer treatment and routine care. The implementation of a new rehabilitation practice was challenged by the influence of the hospital setting.
在癌症心理社会康复中,亲属往往是患者癌症经历和管理的核心,他们需要积极参与康复过程。为满足这一需求,我们开发了一种心理社会康复干预措施。作为干预措施的一部分,肺癌或妇科癌症患者及其亲属组成一对,在入院当天开始接受三次支持性谈话,并在两个月内完成。
本研究的目的是从这对患者的角度对支持性谈话的结果进行定性评估,并对丹麦医院环境中为这对患者提供的心理社会支持有更细致入微的理解。
采用定性研究方法,我们对接受支持性谈话的患者对和接受常规护理的患者对进行了半结构化访谈。访谈聚焦于患者对在医院环境中进行心理社会支持性谈话的体验。采用持续比较分析法来确定与患者对体验谈话方式相关的主题。
分析揭示了两个主要主题:“对支持性谈话的感激”和“医院环境的影响”。尽管大多数患者对谈话的各个方面都表示感激,但他们重视谈话对关系和人际沟通的关注。医院环境提供了宝贵的资源(训练有素的护士和医学专业知识),但现有的临床常规对支持性谈话的实施构成了挑战。
支持性谈话被视为符合目标的心理社会支持,或者是关于癌症治疗和常规护理的信息。新的康复实践的实施受到医院环境影响的挑战。