Sharifa Ezat Wan Puteh, Fuad Ismail, Hayati Yaakub, Zafar Ahmed, Wanda Kiyah George Albert
Department of Community Health, Faculty of Medicine, Universiti Kebangsaan Malaysia Medical Centre, Kuala Lumpur, Malaysia E-mail :
Asian Pac J Cancer Prev. 2014;15(2):695-701. doi: 10.7314/apjcp.2014.15.2.695.
The main objective of palliative treatment for cancer patients has been to maintain, if not improve, the quality of life (QoL). There is a lack of local data on satisfaction and QoL among cancer patients receiving palliative treatment in Malaysia. This study covers patients with incurable, progressive cancer disease receiving palliative treatment in a teaching hospital in Kuala Lumpur, comparing the different components of QoL and correlations with patient satisfaction. A cross-sectional survey using Malay validated SF36 QoL and PSQ-18 (Short Form) tools was carried out between July 2012 -January 2013 with 120 cancer patients receiving palliative treatment, recruited into the study after informed consent using convenient sampling. Results showed that highest satisfaction were observed in Communication Aspect (50.6±9.07) and the least in General Satisfaction (26.4±5.90). The Mental Component Summary (44.9±6.84) scored higher when compared with the Physical Component Summary (42.2±7.91). In this study, we found that patient satisfaction was strongly associated with good quality of life among cancer patients from a general satisfaction aspect (r=0.232). A poor significant negative correlation was found in Physical Component (technical quality, r=-0.312). The Mental Component showed there was a poor negative correlation between time spent with doctor (r=-0.192) and accessibility, (r=-0.279). We found that feeling at peace and having a sense of meaning in life were more important to patients than being active or achieving good physical comfort. More studyis needed to investigate patients who score poorly on physical and mental component aspects to understand their needs in order to achieve better cancer care.
癌症患者姑息治疗的主要目标一直是维持(若无法改善则至少维持)生活质量(QoL)。马来西亚缺乏关于接受姑息治疗的癌症患者满意度和生活质量的本地数据。本研究涵盖了在吉隆坡一家教学医院接受姑息治疗的患有无法治愈的进展性癌症疾病的患者,比较了生活质量的不同组成部分以及与患者满意度的相关性。2012年7月至2013年1月期间,采用马来语验证的SF36生活质量和PSQ - 18(简表)工具对120名接受姑息治疗的癌症患者进行了横断面调查,这些患者在获得知情同意后采用方便抽样法纳入研究。结果显示,沟通方面的满意度最高(50.6±9.07),总体满意度最低(26.4±5.90)。心理成分总结得分(44.9±6.84)高于身体成分总结得分(42.2±7.91)。在本研究中,我们发现从总体满意度方面来看,患者满意度与癌症患者的良好生活质量密切相关(r = 0.232)。在身体成分(技术质量,r = -0.312)方面发现了显著的负相关。心理成分显示,与医生相处的时间(r = -0.192)和就医便利性(r = -0.279)之间存在较弱的负相关。我们发现,内心平静和拥有生活意义感对患者来说比积极活动或获得良好的身体舒适度更为重要。需要更多研究来调查在身体和心理成分方面得分较低的患者,以了解他们的需求,从而实现更好的癌症护理。