Delparte J J, Chau B A, Mills S, Burns A S
1Lyndhurst Centre, Toronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada.
1] 1Lyndhurst Centre, Toronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada [2] Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
Spinal Cord. 2014 May;52(5):400-6. doi: 10.1038/sc.2014.22. Epub 2014 Mar 18.
Mixed (environmental scan, qualitative and semiquantitative).
To develop a customizable patient and family education resource for people with spinal cord injury (SCI).
SCI rehabilitation center (Canada).
An environmental scan was conducted and stakeholder input sought to generate a list of potential handouts and inform content development. Staff members were recruited to draft handouts, which were later edited and finalized by the project team. Hardcopies of handouts were placed in cabinets throughout the rehabilitation center. Staff members were also trained/coached to facilitate and promote usage; which was then tracked for 2 years.
One hundred and fifty-six potential handouts were identified; 83 deemed high priority. Seventy-two handouts addressing patient organization, self-management and community integration were finalized for phase 1. At inpatient admission, patients receive a binder containing base materials. The binder is then customized and populated with pertinent handouts throughout the rehabilitation admission, and taken home at discharge for future reference. Handouts with the highest usage covered medical management (for example, bladder, bowel and pressure ulcers), mobility and activities of daily living. Handouts were also helpful for staff training and orientation, as well as increasing the confidence of staff providing education outside their immediate area of expertise.
Spinal Cord Essentials is a novel patient and family education initiative comprised of practical handouts that address many important aspects of SCI management. Handouts can be downloaded for free in four languages (English, French, Chinese and Farsi) at www.spinalcordessentials.ca. Additional handouts are planned for subsequent phases of the project.
混合式（环境扫描、定性和半定量）。
为脊髓损伤（SCI）患者开发一种可定制的患者及家属教育资源。
SCI康复中心（加拿大）。
进行了环境扫描，并征求利益相关者的意见，以生成潜在手册清单并为内容开发提供信息。招募工作人员起草手册，随后由项目团队进行编辑和定稿。手册的硬拷贝放置在整个康复中心的柜子里。还对工作人员进行了培训/指导，以促进和推动手册的使用；并对使用情况进行了为期2年的跟踪。
确定了156份潜在手册；83份被视为高度优先。72份涉及患者组织、自我管理和社区融入的手册被最终确定用于第一阶段。在住院患者入院时，患者会收到一个包含基础材料的活页夹。然后在整个康复住院期间对手册进行定制并填充相关手册，并在出院时带回家供日后参考。使用量最高的手册涵盖医疗管理（如膀胱、肠道和压疮）、 mobility和日常生活活动。手册对工作人员培训和入职培训也有帮助，还增强了在其专业领域之外提供教育的工作人员的信心。
《脊髓要点》是一项新颖的患者及家属教育倡议，由实用手册组成，涵盖了SCI管理的许多重要方面。手册可在www.spinalcordessentials.ca上免费下载四种语言（英语、法语、中文和波斯语）的版本。计划在项目的后续阶段增加更多手册。
