Torkamani Mariam, McDonald Louise, Saez Aguayo Ignasi, Kanios Christos, Katsanou Maria-Nefeli, Madeley Laura, Limousin Patricia D, Lees Andrew J, Haritou Maria, Jahanshahi Marjan
Sobell Department of Motor Neuroscience & Movement Disorders, UCL Institute of Neurology & The National Hospital for Neurology and Neurosurgery, London, UK.
Badalona Serveis Assistencials, Badalona, Spain.
J Alzheimers Dis. 2014;41(2):515-23. doi: 10.3233/JAD-132156.
The use of telemedicine is becoming increasingly popular in assisting with the home management of People with Dementia (PwD) by offering services to the carers that may enhance their ability to care for their relative for longer. A computerized platform, ALADDIN, was evaluated in its usefulness to reduce carer burden and distress and to improve their quality of life, in an attempt to delay institutionalization of PwD. ALADDIN offers educational material about dementia to carers and provides the opportunity to contact other carers and clinicians. ALADDIN also facilitates remote monitoring of the PwD and their carers by the clinicians to enable speedy delivery of appropriate intervention. The ALADDIN platform was piloted at three European sites, and used by thirty carers of PwD living in the community (platform group). The platform group and a control group of thirty PwD and their carers were assessed at baseline, 3 months, and 6 months. The results showed a significant improvement in the quality of life of the carers in the platform group, with some reduction in carer burden and distress. The platform was useful in monitoring the patients and facilitating contact with other professionals. Access to and use of the ALADDIN platform was rated positively by carers and clinicians. The ALADDIN platform's usefulness and applicability for prolonging the home management of PwD are discussed.
远程医疗的应用在协助痴呆症患者（PwD）的家庭管理方面越来越受欢迎，它为护理人员提供服务，可能会提高他们长期照顾亲属的能力。一个名为ALADDIN的计算机化平台，在减轻护理人员负担和痛苦以及改善他们的生活质量方面的有用性得到了评估，目的是试图推迟痴呆症患者的机构化安置。ALADDIN为护理人员提供有关痴呆症的教育材料，并提供与其他护理人员和临床医生联系的机会。ALADDIN还便于临床医生对痴呆症患者及其护理人员进行远程监测，以便能够迅速提供适当的干预措施。ALADDIN平台在欧洲的三个地点进行了试点，供居住在社区中的30名痴呆症患者的护理人员使用（平台组）。平台组以及由30名痴呆症患者及其护理人员组成的对照组在基线、3个月和6个月时接受了评估。结果显示，平台组护理人员的生活质量有显著改善，护理人员的负担和痛苦有所减轻。该平台在监测患者和促进与其他专业人员的联系方面很有用。护理人员和临床医生对使用ALADDIN平台的评价很高。本文讨论了ALADDIN平台在延长痴呆症患者家庭管理方面的有用性和适用性。
