Szramka-Pawlak Beata, Hornowska Elżbieta, Walkowiak Hanna, Zaba Ryszard
Department of Dermatology, Poznan University of Medical Sciences, ul. Przybyszewskiego 49, 60-355 Poznan, Poland ; Department of Dermatology, Poznan University of Medical Sciences, ul. Przybyszewskiego 49, Poznan, 60-355 Poland.
Institute of Psychology, Adam Mickiewicz University, ul. Szamarzewskiego 89, 60-568 Poznan, Poland.
Appl Res Qual Life. 2014;9(2):273-283. doi: 10.1007/s11482-013-9222-1. Epub 2013 Mar 7.
Clinical observations and medical reports indicate that psoriasis has a tremendous impact on patients' lives, lowering their quality in many important areas. However, the vast majority of research deals only with health-related issues. This study aimed to compare the general quality of life of psoriasis patients and healthy volunteers by examining psychological variables thought to modify the quality of life. 42 patients with psoriasis and 42 healthy volunteers matched for gender, age and education level were tested. Flanagan Quality of Life Scale was used to evaluate general quality of life. Basic hope level was assessed with Basic Hope Inventory. Trait hope was estimated using Trait Hope Scale. Psoriasis Area Severity Index was used to assess the severity of the disease. Psoriasis patients have a significantly lower overall quality of life ( = 0.05), modified by Physical and Material Well-being ( = 0.01), Personal Development and Fulfillment ( = 0.03), and Recreation ( = 0.04). They also have lower levels of trait hope ( = 0.04) and its agency component ( = 0.01). There were moderate, negative significant correlations with basic hope and such components of quality of life as Physical and Material Well-being ( = 0.03, = - 0.34) and Relations with other People ( = 0.02, = - 0.35). These results support the hypothesis of a reduced general quality of life and trait hope in psoriatics. Thus, psychological help for people suffering from dermatological disorders might be as important as medical intervention. Basic hope can be treated as a resource in coping with these disorders and trait hope as a resource conducive to well-being.
临床观察和医学报告表明，银屑病对患者的生活有巨大影响，在许多重要方面降低了他们的生活质量。然而，绝大多数研究仅涉及与健康相关的问题。本研究旨在通过检查被认为会改变生活质量的心理变量，比较银屑病患者和健康志愿者的总体生活质量。对42名银屑病患者和42名在性别、年龄和教育水平上相匹配的健康志愿者进行了测试。使用弗拉纳根生活质量量表来评估总体生活质量。用基本希望量表评估基本希望水平。用特质希望量表估计特质希望。使用银屑病面积和严重程度指数来评估疾病的严重程度。银屑病患者的总体生活质量显著较低（P = 0.05），在身体和物质幸福（P = 0.01）、个人发展与成就（P = 0.03）以及娱乐（P = 0.04）方面受到影响。他们的特质希望水平（P = 0.04）及其动力成分（P = 0.01）也较低。基本希望与生活质量的身体和物质幸福（P = 0.03，r = - 0.34）以及与他人关系（P = 0.02，r = - 0.35）等成分之间存在中度负相关。这些结果支持了银屑病患者总体生活质量和特质希望降低的假设。因此，对皮肤病患者的心理帮助可能与医学干预同样重要。基本希望可被视为应对这些疾病的一种资源，特质希望可被视为有助于幸福的一种资源。
