Rix E F, Barclay L, Wilson S
University Centre for Rural Health, University of Sydney, Lismore, New South Wales, Australia.
Rural Remote Health. 2014;14(2):2679. Epub 2014 Jun 3.
Reflexivity is crucial for non-Aboriginal researchers working with Aboriginal people. This article describes a process of 'reflexive practice' undertaken by a white clinician/researcher while working with Aboriginal people. The clinician/researcher elicited Aboriginal people's experience of being haemodialysis recipients in rural Australia and their perceptions of their disease and treatment. The aim of this article is to report the methods used during this qualitative project to guide the researcher in conducting culturally appropriate health research with Aboriginal people. The goal of this work was to improve health services, informed and guided by the Aboriginal recipients themselves. The article describes the theory and methods used to develop reflexive skills. It also reports how the clinician/researcher managed her closeness to the topic and participants (some being patients under her care) and the processes used to ensure her subjectivity did not interfere with the quality of research.
Three layers of reflexive practice are described: examining self within the research, examining interpersonal relationships with participants, and examining health systems. The alignment of the three 'lenses' used to describe the study is exposed. Complex insider/outsider roles are explored through multiple layers of reflexive practice. Regular journal writing was the primary tool used to undertake this reflexive practice. An Aboriginal advisory group and co-investigators collaborated and assisted the clinician/researcher to scrutinise and understand her positioning within the study. Researcher positioning, power and unequal relationships are discussed. Issues such as victim blaming and the disconnect between clinicians' views about treatment compliance and Aboriginal peoples' prioritisation of family obligations for before treatment are presented.
Aboriginal patients must negotiate a health services system where racism and victim blaming are institutionalised, but the effect of these on the research relationship can be mitigated through reflexive practice. Using a framework for relational accountability that incorporates respect, responsibility and reciprocity can enable non-Aboriginal clinicians and/or researchers to work effectively with Aboriginal patients. These results may assist clinicians and policy makers develop strategies for improving quality of care.
反思对与原住民合作的非原住民研究人员至关重要。本文描述了一位白人临床医生/研究人员在与原住民合作时所进行的“反思性实践”过程。这位临床医生/研究人员探究了澳大利亚农村地区原住民血液透析接受者的经历以及他们对自身疾病和治疗的看法。本文旨在报告这个定性项目中所使用的方法,以指导研究人员开展适合原住民文化的健康研究。这项工作的目标是在原住民接受者自身的信息和指导下改善医疗服务。本文描述了用于培养反思技能的理论和方法。它还报告了这位临床医生/研究人员如何处理自己与研究主题及参与者(其中一些是她所照顾的患者)的密切关系,以及为确保她的主观性不影响研究质量所采用的过程。
文中描述了反思性实践的三个层面:在研究中审视自我、审视与参与者的人际关系以及审视医疗系统。揭示了用于描述该研究的三个“视角”的一致性。通过多层次的反思性实践探索了复杂的 insider/outsider 角色。定期撰写日志是进行这种反思性实践的主要工具。一个原住民咨询小组和共同研究者进行合作并协助这位临床医生/研究人员审视并理解她在研究中的定位。讨论了研究人员的定位、权力和不平等关系。提出了诸如指责受害者以及临床医生对治疗依从性的看法与原住民将家庭义务置于治疗之前的优先顺序之间的脱节等问题。
原住民患者必须在一个将种族主义和指责受害者制度化的医疗服务系统中进行协商,但通过反思性实践可以减轻这些对研究关系的影响。使用一个包含尊重、责任和互惠的关系问责框架能够使非原住民临床医生和/或研究人员有效地与原住民患者合作。这些结果可能有助于临床医生和政策制定者制定提高护理质量的策略。