University of Massachusetts Medical School Worcester, MA, USA.
Front Neuroinform. 2014 May 21;8:52. doi: 10.3389/fninf.2014.00052. eCollection 2014.
Data sharing is becoming increasingly common, but despite encouragement and facilitation by funding agencies, journals, and some research efforts, most neuroimaging data acquired today is still not shared due to political, financial, social, and technical barriers to sharing data that remain. In particular, technical solutions are few for researchers that are not a part of larger efforts with dedicated sharing infrastructures, and social barriers such as the time commitment required to share can keep data from becoming publicly available. We present a system for sharing neuroimaging data, designed to be simple to use and to provide benefit to the data provider. The system consists of a server at the International Neuroinformatics Coordinating Facility (INCF) and user tools for uploading data to the server. The primary design principle for the user tools is ease of use: the user identifies a directory containing Digital Imaging and Communications in Medicine (DICOM) data, provides their INCF Portal authentication, and provides identifiers for the subject and imaging session. The user tool anonymizes the data and sends it to the server. The server then runs quality control routines on the data, and the data and the quality control reports are made public. The user retains control of the data and may change the sharing policy as they need. The result is that in a few minutes of the user's time, DICOM data can be anonymized and made publicly available, and an initial quality control assessment can be performed on the data. The system is currently functional, and user tools and access to the public image database are available at http://xnat.incf.org/.
数据共享变得越来越普遍,但尽管资助机构、期刊和一些研究工作都在鼓励和促进数据共享,但由于数据共享存在政治、财务、社会和技术障碍,今天获得的大多数神经影像学数据仍然没有被共享。特别是,对于那些没有专门的数据共享基础设施的大型研究工作的一部分的研究人员来说,技术解决方案很少,而像共享所需的时间承诺这样的社会障碍可能会使数据无法公开。我们提出了一个用于共享神经影像学数据的系统,旨在使用简单,并为数据提供者提供益处。该系统由国际神经信息协调设施(INCF)的服务器和用于将数据上传到服务器的用户工具组成。用户工具的主要设计原则是易于使用:用户确定包含数字成像和通信医学(DICOM)数据的目录,提供他们的 INCF 门户身份验证,并提供主题和成像会话的标识符。用户工具对数据进行匿名化,并将其发送到服务器。然后,服务器对数据运行质量控制程序,将数据和质量控制报告公开。用户保留对数据的控制权,并可以根据需要更改共享策略。结果是,用户只需几分钟的时间,就可以对 DICOM 数据进行匿名化并公开,并对数据进行初步的质量控制评估。该系统目前已经可以使用,用户工具和公共图像数据库的访问权限可以在 http://xnat.incf.org/ 获得。