Philbin Morgan M
a HIV Center for Clinical and Behavioral Studies , Columbia University, and New York State Psychiatric Institute , USA.
Med Anthropol. 2014;33(4):288-302. doi: 10.1080/01459740.2013.847436.
Therapeutic breakthroughs have transformed HIV into an illness that is routinized within the clinic. It is unclear, however, how these breakthroughs shape the lives of newly infected adolescents who are beginning to receive what will be life-long care and treatment. The reframing of HIV as no longer exceptional influences the lived experience of urban adolescents, whose futures must shift to incorporate expectations that they live a full life with HIV. They must now manage the clinical demands of a chronic and infectious disease, while navigating the transition from adolescence to a 'normal' adulthood, which, for some, means completing education, findings jobs, and building careers. Drawing on ethnographic research conducted in Baltimore, Maryland, I examine the tensions adolescents face as their experiences with HIV conflict with policy makers and researchers' reframing of HIV as a disease like any other.
治疗上的突破已将艾滋病转化为一种在临床中已常规化的疾病。然而，尚不清楚这些突破如何塑造刚开始接受终身护理和治疗的新感染青少年的生活。将艾滋病重新定义为不再特殊，这影响了城市青少年的生活体验，他们的未来必须转变，以纳入带着艾滋病过上充实生活的期望。他们现在必须应对一种慢性传染病的临床需求，同时要经历从青春期到“正常”成年期的过渡，对一些人来说，这意味着完成学业、找到工作并建立职业生涯。基于在马里兰州巴尔的摩进行的人种志研究，我审视了青少年所面临的紧张状况，因为他们与艾滋病的经历与政策制定者和研究人员将艾滋病重新定义为与其他疾病无异的疾病这一观点相冲突。
