CAPHRI School for Public Health and Primary Care, Department of Family Medicine, Maastricht University, Maastricht, The Netherlands.
Department of Pulmonology, Sint Franciscus Gasthuis, Rotterdam, The Netherlands.
NPJ Prim Care Respir Med. 2014 Jul 10;24:14021. doi: 10.1038/npjpcrm.2014.21.
In deciding on the treatment plan for patients with chronic obstructive pulmonary disease (COPD), the burden of COPD as experienced by patients should be the core focus. It is therefore important for daily practice to develop a tool that can both assess the burden of COPD and facilitate communication with patients in clinical practice. This paper describes the development of an integrated tool to assess the burden of COPD in daily practice. A definition of the burden of COPD was formulated by a Dutch expert team. Interviews showed that patients and health-care providers agreed on this definition. We found no existing instruments that fully measured burden of disease according to this definition. However, the Clinical COPD Questionnaire meets most requirements, and was therefore used and adapted. The adapted questionnaire is called the Assessment of Burden of COPD (ABC) scale. In addition, the ABC tool was developed, of which the ABC scale is the core part. The ABC tool is a computer program with an algorithm that visualises outcomes and provides treatment advice. The next step in the development of the tool is to test the validity and effectiveness of both the ABC scale and tool in daily practice.
在为慢性阻塞性肺疾病（COPD）患者制定治疗方案时，应将患者所经历的 COPD 负担作为核心关注点。因此，在日常实践中开发一种既能评估 COPD 负担又能促进与患者进行沟通的工具非常重要。本文描述了一种用于日常实践中评估 COPD 负担的综合工具的开发。一个荷兰专家小组制定了 COPD 负担的定义。访谈表明，患者和医疗保健提供者都同意这个定义。我们没有发现完全根据这个定义来衡量疾病负担的现有工具。然而，临床 COPD 问卷符合大多数要求，因此被使用和改编。经过改编的问卷被称为 COPD 负担评估（ABC）量表。此外，还开发了 ABC 工具，其中 ABC 量表是核心部分。ABC 工具是一个带有算法的计算机程序，可可视化结果并提供治疗建议。该工具的下一步开发是在日常实践中测试 ABC 量表和工具的有效性和实用性。
